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"I’m not going to be cured". How breast cancer awareness and support sidelines people with metastatic disease

<p><em><a href="https://theconversation.com/profiles/sophie-lewis-111177">Sophie Lewis</a>, <a href="https://theconversation.com/institutions/university-of-sydney-841">University of Sydney</a>; <a href="https://theconversation.com/profiles/andrea-smith-15431">Andrea Smith</a>, <a href="https://theconversation.com/institutions/university-of-sydney-841">University of Sydney</a>, and <a href="https://theconversation.com/profiles/katherine-kenny-318175">Katherine Kenny</a>, <a href="https://theconversation.com/institutions/university-of-sydney-841">University of Sydney</a></em></p> <p>There have been incredible <a href="https://www.cancer.gov/types/breast/research">advances</a> in breast cancer diagnosis and treatment in recent years. And stories about celebrities who have “beaten” breast cancer continue to be a source of inspiration for many people.</p> <p>However, this emphasis on fighting, beating and surviving cancer shuts out the voices of those who will not survive. That is, the many people diagnosed with incurable, life-limiting metastatic breast cancer, <a href="https://www.aihw.gov.au/reports/cancer/cancer-data-in-australia">which kills nine Australians every day</a> or nearly <a href="https://www.aihw.gov.au/reports/cancer/cancer-data-in-australia">3,300 people</a> a year. Yet an <a href="https://www.bcna.org.au/latest-news/bcna-news/making-metastatic-breast-cancer-count/">estimated 10,000</a> Australians are living with the diagnosis.</p> <p>Being diagnosed with metastatic breast cancer, as one of the authors has been, means ongoing treatment to live as long, and as well, as possible. It also means an ongoing need for emotional and practical support.</p> <p>However, society, health-care professionals, cancer advocacy organisations, even a patient’s closest family and friends, can struggle to understand what it is like to live with an incurable and life-limiting cancer and how best to provide support.</p> <h2>Why is there so little awareness?</h2> <p><a href="https://www.breastcancer.org/types/metastatic">Metastatic breast cancer</a>, also called stage four breast cancer, is the most serious form of breast cancer. Unlike early breast cancer that is contained within the breast or nearby lymph nodes, metastatic breast cancer has spread to other parts of the body, most often the bones, lungs, liver, or brain.</p> <p>There is no cure for metastatic breast cancer despite decades of advocacy, funding and research. Treatment continues for as long as it helps to control the cancer and is tolerated by the patient. Median survival is <a href="https://onlinelibrary.wiley.com/doi/10.5694/mja2.51687">two to three years</a>, although newer, novel treatments mean some patients are living much longer.</p> <p>As a society, we can be uncomfortable <a href="https://theconversation.com/before-you-go-are-you-in-denial-about-death-34056">talking about and facing death</a>. When it comes to cancer, we usually prefer focusing on good news stories. These narratives are often perceived to be better for fundraising and are reassuring for people newly diagnosed. But they fail to <a href="https://onlinelibrary.wiley.com/doi/10.1111/1467-9566.13704">represent</a> the diversity and reality of cancer experiences.</p> <p>Despite considerable research into people with non-metastatic breast cancer, <a href="https://www.bcna.org.au/latest-news/bcna-news/making-metastatic-breast-cancer-count/">relatively little</a> is known about Australians with metastatic breast cancer.</p> <h2>Feeling silenced and unsupported</h2> <p>Through our <a href="https://onlinelibrary.wiley.com/doi/10.1111/1467-9566.13704">research</a> we wanted to better understand people’s experiences of metastatic breast cancer. We interviewed 38 participants from around Australia with diverse experiences of metastatic breast cancer. Participants were recruited through breast cancer and community organisations.</p> <p>We found messages and public campaigns about cancer survivorship, which emphasise hope and positivity, drowned out the voices of those with metastatic breast cancer. The focus on “success stories” about surviving breast cancer made some people feel like it was their responsibility to “beat” cancer. If they didn’t, it was their own fault. </p> <p>As one interviewee told us: "I react quite badly to all the, ‘we’ve had breast cancer and we beat it and we’ve survived. Aren’t we fantastic.’ There’s almost a feeling if you haven’t beaten your breast cancer you haven’t tried hard enough."</p> <p>Silence around metastatic breast cancer was common in research participants’ experiences. It prevented many from connecting with others and to the support they needed. It even affected relationships with those closest to them leaving them feeling misunderstood: "They don’t realise I’ve got to be on treatment forever. I’m not going to be cured. I think society thinks everything can be fixed; metastatic breast cancer actually can’t be fixed."</p> <p>Sharing deep fears and worries about their life expectancy can leave people with metastatic breast cancer feeling drained rather than supported. Many participants reported having to support and shield family, friends, acquaintances and work colleagues from the reality of their terminal diagnosis.</p> <p>"You hide how you feel because you don’t want to be avoided […] You put on that big, happy face. But like an onion if you peeled the layers away, you’d find out what’s going on."</p> <p>While many participants wanted to join a community of people with metastatic breast cancer, they struggled to know how to find one. Those who did, emphasised how invaluable it had been: "Being able to identify with and know that these people really get me is a huge relief and it reduces the isolation."</p> <p>These findings echo <a href="https://www.bcna.org.au/media/alcjjmm2/bcna_member-survey-report_2017.pdf">previous research</a> demonstrating people with metastatic breast cancer have higher support needs than those with non-metastatic breast cancer. And these needs are <a href="https://www.bcna.org.au/media/alcjjmm2/bcna_member-survey-report_2017.pdf">less likely to be met</a> by <a href="https://bmchealthservres.biomedcentral.com/articles/10.1186/s12913-022-08269-8">health care, support services</a>, family or friends.</p> <h2>A new path</h2> <p>Being diagnosed with metastatic breast cancer can be terrifying, lonely and create significant support needs. It is essential people with metastatic breast cancer have their <a href="https://ascopubs.org/doi/10.1200/OP.20.00183">voices listened to</a> and their needs met.</p> <p>Next steps should include:</p> <ul> <li> <p><a href="https://bcna-dxp.azureedge.net/media/d32bhdzf/bcna_making-metastatic-breast-cancer-count_2022.pdf">improving data collection by cancer registries</a> so we know exactly how many people in Australia have metastatic breast cancer</p> </li> <li> <p>increasing representation of people with metastatic breast cancer in advocacy, support organisations and research</p> </li> <li> <p>nationwide access to peer-to-peer programs and professionally led metastatic breast cancer support groups.</p> </li> </ul> <p>We must ensure people with metastatic breast cancer are the ones to speak to their experience and needs. As a colleague with metastatic breast cancer said: "I read an article written by an early-stage breast cancer ‘survivor’. It felt like someone describing winter when they had only ever experienced autumn."</p> <p>If you or someone you know has metastatic breast cancer, these organisations may be able to support you or connect you with others with the same diagnosis:</p> <ul> <li> <p><a href="https://www.bcna.org.au">Breast Cancer Network Australia</a> for information and support</p> </li> <li> <p><a href="https://www.mcgrathfoundation.com.au/">McGrath Foundation</a> for information about access to metastatic breast care nurses.</p> </li> </ul> <hr /> <p><em>The authors would like to thank the members of Breast Cancer Network Australia’s Metastatic Breast Cancer Lived Experience Reference Group for their review of this article.</em><img style="border: none !important; box-shadow: none !important; margin: 0 !important; max-height: 1px !important; max-width: 1px !important; min-height: 1px !important; min-width: 1px !important; opacity: 0 !important; outline: none !important; padding: 0 !important;" src="https://counter.theconversation.com/content/215458/count.gif?distributor=republish-lightbox-basic" alt="The Conversation" width="1" height="1" /></p> <p><em><a href="https://theconversation.com/profiles/sophie-lewis-111177">Sophie Lewis</a>, Senior Lecturer, University of Sydney, <a href="https://theconversation.com/institutions/university-of-sydney-841">University of Sydney</a>; <a href="https://theconversation.com/profiles/andrea-smith-15431">Andrea Smith</a>, Research fellow, <a href="https://theconversation.com/institutions/university-of-sydney-841">University of Sydney</a>, and <a href="https://theconversation.com/profiles/katherine-kenny-318175">Katherine Kenny</a>, ARC DECRA Senior Research Fellow, <a href="https://theconversation.com/institutions/university-of-sydney-841">University of Sydney</a></em></p> <p><em>Image credits: Getty Images</em></p> <p><em>This article is republished from <a href="https://theconversation.com">The Conversation</a> under a Creative Commons license. Read the <a href="https://theconversation.com/im-not-going-to-be-cured-how-breast-cancer-awareness-and-support-sidelines-people-with-metastatic-disease-215458">original article</a>.</em></p>

Caring

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4 ways to support someone with dementia during extreme heat

<p><em><a href="https://theconversation.com/profiles/nikki-anne-wilson-342631">Nikki-Anne Wilson</a>, <a href="https://theconversation.com/institutions/unsw-sydney-1414">UNSW Sydney</a></em></p> <p>Our ability to adapt our behaviour to changes in temperature takes a significant amount of thought and decision making. For example, we need to identify suitable clothing, increase our fluid intake, and understand how to best keep the house cool.</p> <p>A person with dementia may find some or all these things challenging. These and other factors mean, for someone with dementia, extreme heat <a href="https://pubmed.ncbi.nlm.nih.gov/31520832/#:%7E:text=Conclusion%3A%20Heatwaves%20increased%20the%20risk,heat%2Drelated%20Alzheimer's%20disease%20burden.">can be deadly</a>.</p> <p>But as the temperature rises, friends, relatives and carers can help.</p> <h2>El Niño means there are challenges ahead</h2> <p>The recent declaration of <a href="https://www.abc.net.au/news/2023-09-19/bureau-of-meteorology-el-nino-blog/102875154">another El Niño</a> means we need to think about how we can best support those more vulnerable to be safe during the warmer months.</p> <p>Extreme heat and bushfires bring unique challenges for someone with dementia.</p> <p>Bushfires have a significant impact on older people’s mental health. But they generally <a href="https://www.health.act.gov.au/sites/default/files/2023-03/PATH_Impact%20of%202019-20%20Bushfires%20on%20a%20Cohort%20of%20Older%20Adults_REPORT_V3_0.pdf">bounce back</a> quickly.</p> <p>However, for someone with dementia, extreme heat can lead to a <a href="https://www.sciencedirect.com/science/article/pii/S0013935119305110">significant deterioration</a> in their overall health and they may not recover.</p> <p>Emergency evacuations can also be confusing and distressing for a person with dementia, so it is important to think ahead.</p> <h2>Why are people with dementia more at risk?</h2> <p>Dementia can affect the parts of the brain that help <a href="https://academic.oup.com/brain/article/138/11/3360/332653?login=true">regulate</a> our body temperature. Some <a href="https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0243665">medications</a> can also increase someone’s sensitivity to heat.</p> <p>Problems with memory and thinking associated with dementia <a href="https://www.alzheimers.org.uk/get-support/daily-living/drinking-hydration">means</a> remembering to drink or communicating you are thirsty can be challenging.</p> <p>Heat can affect everyone’s mood. But if someone with dementia becomes dehydrated this can <a href="https://www.alzdiscovery.org/cognitive-vitality/blog/can-dehydration-impair-cognitive-function">increase</a> confusion and agitation, making it harder for them to know how to cool down.</p> <p>A person with dementia can also wander and become lost, which can be dangerous in extreme heat.</p> <h2>4 ways to support someone with dementia</h2> <p><strong>1. Avoid dehydration and heatstroke</strong></p> <p>Try to avoid dehydration by encouraging someone to drink throughout the day. It’s better to have <a href="https://pubmed.ncbi.nlm.nih.gov/31769256/">small amounts</a> of liquid regularly instead of a large amount all at once. Little and often will help maximise hydration while avoiding sudden trips to <a href="https://www.betterhealth.vic.gov.au/health/conditionsandtreatments/dementia-continence-issues#causes-of-incontinence-in-people-with-dementia">the bathroom</a>.</p> <p>Try to offer different types of drinks, or ice blocks. Placing drinks in sight can help as a reminder to drink. Choose foods with a high liquid content, such as fruit, salads, cool broths and yoghurt.</p> <p>Look out for <a href="https://www.nia.nih.gov/health/hot-weather-safety-older-adults#:%7E:text=Signs%20of%20heat%20stroke%20are,as%20under%20shade%20or%20indoors.">signs of heatstroke</a>, such as increased confusion beyond what the person would usually experience. Heatstroke may be more difficult to spot in someone living with dementia so it is important to check in when possible and to help them cool down if needed.</p> <p><strong>2. Cool the home</strong></p> <p>Try to modify their home to make it easier to stay cool. Some air-conditioners have complex settings so make sure the temperature is set appropriately and the person with dementia knows how to use the controls.</p> <p>It is important to keep blinds and curtains shut where possible to reduce heat. However, ensure the <a href="https://www.scie.org.uk/dementia/supporting-people-with-dementia/dementia-friendly-environments/lighting.asp">lighting is adequate</a> to avoid falls.</p> <p>Try to support the person to make suitable clothing choices for the season by having cool, lightweight options easily available.</p> <p><strong>3. Think about communications early</strong></p> <p>If someone with dementia lives alone, consider how you will maintain contact in an emergency.</p> <p>Some people may not realise many landlines don’t work in a power outage, and of course, mobile phones can’t be recharged. Ensure the person with dementia has access to an <a href="https://www.telstra.com.au/support/category/home-phone/uninterruptible-power-supply">uninterruptable power supply</a>. This can help maintain communication for a few hours in a blackout.</p> <p><strong>4. Have an evacuation plan</strong></p> <p>In case of fire, flash flooding or severe storm, <a href="https://dementiaresearch.org.au/wp-content/uploads/2017/10/2447_DCRC_Prep_natural_disaster_EBook_5.pdf">have an evacuation plan</a>. If the person with dementia attends a day or respite centre, know their plan too.</p> <p>The situation can change quickly in an emergency, and this can be particularly overwhelming for people with cognitive issues.</p> <p>Understand that someone with dementia may become distressed when their routine is disrupted. So be prepared with some simple activities or comfort items, current medications, and any specific medical information.</p> <p>Stay up-to-date with <a href="http://www.bom.gov.au/">current warnings</a> and act early whenever possible.</p> <h2>We can all help</h2> <p>It’s not just carers of people with dementia who can help. We can all ensure people with dementia stay safe and cool this spring and summer.</p> <p>So remember to check in on your relatives, friends and neighbours or arrange for someone to do so on your behalf.<img style="border: none !important; box-shadow: none !important; margin: 0 !important; max-height: 1px !important; max-width: 1px !important; min-height: 1px !important; min-width: 1px !important; opacity: 0 !important; outline: none !important; padding: 0 !important;" src="https://counter.theconversation.com/content/213987/count.gif?distributor=republish-lightbox-basic" alt="The Conversation" width="1" height="1" /></p> <p><a href="https://theconversation.com/profiles/nikki-anne-wilson-342631"><em>Nikki-Anne Wilson</em></a><em>, Postdoctoral Research Fellow, Neuroscience Research Australia (NeuRA), <a href="https://theconversation.com/institutions/unsw-sydney-1414">UNSW Sydney</a></em></p> <p><em>Image credits: Getty Images</em></p> <p><em>This article is republished from <a href="https://theconversation.com">The Conversation</a> under a Creative Commons license. Read the <a href="https://theconversation.com/4-ways-to-support-someone-with-dementia-during-extreme-heat-213987">original article</a>.</em></p>

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Ted Lasso star ordered to pay massive child support sum

<p>Jason Sudeikis has been ordered to pay ex Olivia Wilde an enormous sum of child support, as a bitter two-year custody battle draws to a close. </p> <p>According to new court filings obtained by <em><a href="https://pagesix.com/2023/09/25/jason-sudeikis-and-olivia-wilde-settle-custody-battle-actor-to-pay-27500-per-month/" target="_blank" rel="noopener">Page Six</a></em>, the<em> Ted Lasso</em> star has allegedly agreed to pay his ex $27,500 ($A42,800) per month in child support for their two kids, Otis, 9, and Daisy, 6. </p> <p>The hefty settlement has been based on Sudeikis' reported 2023 income of $10.5 million ($A16.3 million) and Wilde’s estimated income of $500,000 ($A778,000).</p> <p>“The parties agree that child support for the minor children in the amount of $27,500 per month is sufficient to maintain the needs of the minor children considering Jason’s station in life … is consistent with each child’s best interest, and application of the guideline would be unjust or inappropriate in this case,” the court papers reportedly state.</p> <p>The legal proceedings began two years ago, and took a dramatic turn in 2022 when Wilde, who was promoting her new movie <em>Don't Worry Darling</em> at the time, was served legal papers while on stage delivering a speech at CinemaCon. </p> <p>At the time, a source told <em><a href="https://pagesix.com/2022/04/29/olivia-wilde-mortified-after-being-served-with-legal-papers/" target="_blank" rel="noopener">Page Six</a></em> that Wilde was mortified over the brazen act. </p> <p>“It seemed unthinkable to her, and it took a moment to set in, but as mortifying as it was, she did not want to give a reaction,” the insider explained.</p> <p>Since then, things have improved for the couple, as they were both seen putting on a united front at Otis' soccer game in LA. </p> <p>Wilde and Sudeikis started dating in November 2011 and got engaged in January 2013. They welcomed their two kids before separating in November 2020.</p> <p><em>Image credits: Getty Images</em></p>

Legal

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6 ways to be more supportive to those closest to you

<p><em><strong>Susan Krauss Whitbourne is a professor of Psychology and Brain Sciences at the University of Massachusetts Amherst. She writes the Fulfilment at Any Age blog for Psychology Today.</strong></em></p> <p>During difficult periods of life, such as experiencing a tragic loss or sudden break-up, those you care about need you to be there for them. At other times, your loved ones may not need help, but at least would like some support and encouragement. It’s well known that receiving social support is one of the best and most effective ways to cope with stress. People who perceive themselves to be supported are also most likely to be happier, and may even live longer than those who don’t. New research on social support for parents of autistic children shows just how you can be the person on whom your loved ones can most rely.</p> <p>The ageing parents of adult children with autism spectrum disorders (ASD) undoubtedly face major challenges in their daily life and, according to this new research, benefit tremendously from the type of social support that friends and loved ones can provide. Christine Marsack, in the School of Social Work at Eastern Michigan University, teamed up with Preethy Samuel of Wayne State University (2017), to investigate the role of social support in mediating the amount of perceived burden and quality of life. As the authors point out, caregiving research on adult children and their ageing parents has typically focused on predicting burden in the children. There is far less known about what happens to ageing parents when it’s the children themselves who are in need of caregiving.</p> <p>The Michigan team based their work on the cognitive model of stress and coping, in which it’s the appraisal of an event as stressful that leads it to have a negative impact on the individual. In the case of parents of children with ASD, after coping with the challenge of receiving the diagnosis itself, their next step is to come “to grips with the condition and obtain access to support services to assist with caregiving” (p. 2379). The question that Marsack and Samuel investigated was whether formal or informal social support would have ameliorating effects on parental stress.</p> <p>Using a sample of 320 parents aged 50 and older, the majority of whom were under 70 years of age, the research team administered an online survey inquiring about psychological quality of life, perception of caregiving burden, contact with formal support agencies, and perceived degree of informal social support. Formal supports were used heavily by sample members, including psychiatric, financial, counselling, and adult day care, for example. Even the relatively wide range of opportunities to get help in this way was not enough to stave off the effects of perceived burden on parental mental health outcomes. Instead, it was their answers to a six-item questionnaire of informal support that proved to be key in reducing their perceived stress.</p> <p>The questionnaire used by Marsack and Samuel was one developed for use in assessing perceived availability of social support by coronary heart disease patients that has been widely adapted to other situations. It’s from this measure, known as the Enhancing Recovery in Coronary Heart Disease (ENRICHD) Social Support Index (ESSI), that we can now look to see how you can support people coping with challenges in their own lives right now:</p> <p><strong>1. Be available to listen. </strong></p> <p>The ESSI asks whether there is someone who will be available to listen when needed. This means that you provide a sounding board when the person who needs your support approaches you. It doesn’t mean that you provide help regardless of whether you’re being asked for it. Let the person you care about know that you’re willing to listen, uncritically, when the situation demands it.</p> <p><strong>2. Be available with advice. </strong></p> <p>When you are approached for help, providing advice can prove to be very supportive. Again, providing unsolicited advice isn’t perceived as particularly supportive, but being ready for it when asked will help ensure that your advice hits a receptive audience.</p> <p><strong>3. Show love and affection. </strong></p> <p>Without providing anything in the way of objective support, it’s often enough just to know that someone cares to help get the stressed individual through tough times. The love and affection could be of the face-to-face form, and it's probably best when it is, but it can also come in the form of virtual cheers.</p> <p><strong>4. Help out every now and then with daily chores or by running errands. </strong></p> <p>This is something you need to be able to do in person, so if you live some distance away from the individual you would like to support, it may mean that you take a trip there every few months to do some of the heavy lifting around the house, or just help with some on-site logistics.</p> <p><strong>5. Support the individual during the decision-making process. </strong></p> <p>The person you care about may have to come up with plans that require more than just a sounding board or advice. Being patiently willing to go through the steps required to solve the problem can give the person you care about a more balanced perspective than would be possible if he or she were making this decision alone.</p> <p><strong>6. Be a person who the person you care about can trust and confide in. </strong></p> <p>The ESSI inquires about being actually present, but if this isn’t feasible, that quality of being trustworthy seems to be key. Caring for an adult child with ASD may have led some of the parents to wish they could talk about their frustrations, perhaps even about those they felt toward their spouse, with someone outside the relationship. Worrying that the person they told might violate that trust would only add to the stress of their situation.</p> <p>You might think it’s enough for the person you care about to sign up for an established support network or to be able to receive financial or emergency assistance. The Marsack and Samuel study shows that the quality of the friendship, trust, and sensitivity you provide that can make an even greater difference.</p> <p>There’s no way to avoid all of the stressful situations that life can present, whether through family situations, work problems, or emergencies. Fulfillment in our relationships involves, as this study shows, that willingness to give the support that will make the most difference in helping those we care about.</p> <p><em>Written by Susan Krauss Whitbourne. Republished with permission of <span style="text-decoration: underline;"><strong><a href="https://www.psychologytoday.com/files/attachments/4141/the-neuroscience-joyful-education-judy-willis-md.pdf" target="_blank" rel="noopener">Psychology Today</a></strong></span>.</em></p> <p><em>Images: Getty</em></p>

Relationships

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‘We lose ourselves’: carers talk about the lonely, stressful work of looking after loved ones

<p><em><a href="https://theconversation.com/profiles/fleur-sharafizad-1138251">Fleur Sharafizad</a>, <a href="https://theconversation.com/institutions/edith-cowan-university-720">Edith Cowan University</a>; <a href="https://theconversation.com/profiles/esme-franken-947855">Esme Franken</a>, <a href="https://theconversation.com/institutions/edith-cowan-university-720">Edith Cowan University</a>, and <a href="https://theconversation.com/profiles/uma-jogulu-1278812">Uma Jogulu</a>, <a href="https://theconversation.com/institutions/edith-cowan-university-720">Edith Cowan University</a></em></p> <p>An informal personal carer is someone who looks after a family member, neighbour or friend in need of care due to disability, illness or age.</p> <p>In Australia, there are approximately 2.8 million informal personal carers, including 906,000 who are primary carers. Projections suggest the national demand for carers will <a href="https://www.carersaustralia.com.au/wp-content/uploads/2020/07/FINAL-Value-of-Informal-Care-22-May-2020_No-CIC.pdf">rise 23% by 2030</a>.</p> <p>Around one in ten Australians are informal carers: <a href="https://www.aihw.gov.au/reports/australias-welfare/informal-carers">most of these unpaid</a>. This group of people support one of society’s most foundational needs and our economy would struggle without them.</p> <p>Yet, little is understood about their experiences. <a href="https://bristoluniversitypressdigital.com/view/journals/ijcc/aop/article-10.1332-239788223X16789866214981/article-10.1332-239788223X16789866214981.xml">Our recent research</a> reveals how this group of carers lack necessary support for their own wellbeing.</p> <h2>Our research</h2> <p>We interviewed 36 informal personal primary carers living across Western Australia and Queensland. Respondents were aged between 34 and 69 years, and had all been the primary carer for a child, parent, partner, or in-law, for between two and 21 years. Data was collected in two waves: one in 2020 and the other in 2021. Respondents were recruited with the help of an Australian carers’ organisation.</p> <h2>‘I’d rather it be someone else’s problem’</h2> <p>Many of the carers we spoke to said they were not caring by choice, but by necessity. They said they feel both unseen and undervalued. A husband who had been caring for his wife who suffers from Alzheimer’s said: "I would rather work. I really don’t like being a carer. I’d rather it be someone else’s problem. Being a carer, you just get forgotten."</p> <p>Carers generally provide care around-the-clock, yet their compensations (such as <a href="https://www.servicesaustralia.gov.au/carer-payment">carer payments</a>) are far from equivalent to full-time pay. The carer payment, for example, equates to only <a href="https://www.carersaustralia.com.au/programs-projects/caring-costs-us/">28% of weekly ordinary time earnings</a> in Australia, and carers can expect to lose <a href="https://www.carersaustralia.com.au/carers-are-17700-worse-off-every-year-in-superannuation-payments/#:%7E:text=Caring%20Costs%20Us%3A%20The%20economic%20impact%20on%20lifetime,every%20year%20they%20are%20in%20that%20caring%20role.">approximately $17,700 in superannuation</a> every year they provide care.</p> <p>Few of <a href="https://www.carersaustralia.com.au/wp-content/uploads/2023/02/FINAL-Carers-Australia-2023-24-Jan-2023-Budget-Submission.pdf">Carers Australia’s pre-budget submission items</a> to benefit carers were adopted in the most recent federal budget. Instead, the budget contained items which may indirectly benefit carers through <a href="https://www.carersaustralia.com.au/wp-content/uploads/2023/05/2023-24-Budget-What-it-means-for-carers.pdf">increased support for the cared-for</a>. But these measures do not explicitly recognise and support carers’ wellbeing.</p> <p>Similarly, the recent draft of the <a href="https://www.pmc.gov.au/resources/draft-national-strategy-care-and-support-economy">National Strategy for the Care and Support Economy</a> recognises the contribution informal carers make to Australia’s economy but focuses on paid care and support.</p> <p>Our interviewees spoke about the personal costs of their work, and the stress and loneliness they experience. They shared feelings of being taken for granted as if their role was not work, let alone difficult work. </p> <p>One mum caring for her disabled son shared: "I just want people to see that, [a] carer doesn’t have any leave, paid leave, or recognition. People just think that’s your loved one, that’s your job. But I do want people to understand that I did not choose to be a carer as my career, but I will do it because it is important."</p> <p>This played into a feeling of people losing their sense of self, because caring work was so demanding and time consuming. A mother who had been caring for her daughter for 17 years after she had been involved in an accident said, "People don’t realise how much we put our life on hold to support the people that need that emotional and mental and physical and spiritual support. We put ourselves in the back shed while we’re supporting them, so we lose ourselves."</p> <h2>A mental toll</h2> <p>Many spoke of how they once had individual goals and ambitions, which they now considered unachievable. All of our interviewees had quit jobs and halted careers to take on personal care full-time. One mother caring for her ill child said: "I think if I had a crystal ball, I don’t know that I would perhaps have become a parent, I think I would have just stuck to my corporate life and had a cat and be done with it."</p> <p>The mental health toll experienced by carers in our study was clear throughout all interviews. A mother looking after her child with mental health challenges expressed: "Every carer has mental health impacts from being a carer. They won’t say it’s depression or anxiety, but it’s mental health because when the hierarchy of needs is not being met for you, you can’t provide them for somebody else."</p> <p>As one interviewee explained, the demanding nature of the work had left them exhausted and as though they “can’t do it”. Our interviewees spoke of “falling apart” under the strain of constantly caring for high-needs people in their households. </p> <p>One mother who cared for her children who were both on the autism spectrum recalled: "How many times, if I don’t go to the bathroom and have a shower to cool down myself, I could kill the kids and myself easily. That’s how bad. We are not ever in the category to get help."</p> <h2>Feeling abandoned</h2> <p>Because so much of their work happens in pre-existing relationships and behind closed doors, carers talked about not just feeling unseen but abandoned. A common theme across all interviews was how carers felt abandoned by institutions, health professionals and, in many cases, friends and family members. </p> <p>One husband who had cared for his wife for close to 20 years said: "The government doesn’t even care about the carers […] we’re not really getting anything and then they’re trying to take the crumbs off us."</p> <p>Carers do not have psychological, institutional or social support for themselves as individuals, separate from their role. But these support pillars are necessary so the entire responsibility of care does not fall solely on informal carers.</p> <p><a href="https://www.carersaustralia.com.au/wp-content/uploads/2023/02/FINAL-Carers-Australia-2023-24-Jan-2023-Budget-Submission.pdf">Carer-inclusive activities</a> could be a good start. But policy should also be responsive to the unique and unmet needs of carers. These relate to the lack of personal and professional development, feelings of abandonment and social isolation.</p> <p>With an ageing population, a pandemic, and an emerging crisis over the quality of care for older Australians and people with disabilities, the role of informal carers has become increasingly important.</p> <p>The truth is that most of us will likely, at some point, undertake care work or be the person being cared for. Better formalised support for carers will ultimately improve the care for the most vulnerable among us and society as a whole.</p> <p><em>If this article has raised issues for you, or if you’re concerned about someone you know, call <a href="http://lifeline.org.au/">Lifeline</a> on 13 11 14. </em></p> <p><em><a href="https://theconversation.com/profiles/fleur-sharafizad-1138251">Fleur Sharafizad</a>, Lecturer in Management, <a href="https://theconversation.com/institutions/edith-cowan-university-720">Edith Cowan University</a>; <a href="https://theconversation.com/profiles/esme-franken-947855">Esme Franken</a>, Lecturer in Management, <a href="https://theconversation.com/institutions/edith-cowan-university-720">Edith Cowan University</a>, and <a href="https://theconversation.com/profiles/uma-jogulu-1278812">Uma Jogulu</a>, Senior Lecturer, School of Business and Law, <a href="https://theconversation.com/institutions/edith-cowan-university-720">Edith Cowan University</a></em></p> <p><em>Image credits: Getty Images</em></p> <p><em>This article is republished from <a href="https://theconversation.com">The Conversation</a> under a Creative Commons license. Read the <a href="https://theconversation.com/we-lose-ourselves-carers-talk-about-the-lonely-stressful-work-of-looking-after-loved-ones-206409">original article</a>.</em></p>

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Rare sighting as famous friends step out in support of Michael J. Fox

<p>Michael J. Fox has been joined by a host of his famous friends for a screening of his upcoming documentary. </p> <p>The new documentary explores the <em>Back to the Future</em> star's ongoing battle with Parkinson's disease, and the changes in his life and condition as he gets older. </p> <p>In a show of support for the actor, his celebrity mates joined together for a screening of <em>Still</em> at New York's Lincoln Center. </p> <p>Among the famous faces was actress Meg Ryan, who has not been spotted in public for more than six months. </p> <p>The former rom-com queen, best known for starring roles in films like <em>When Harry Met Sally</em>, <em>Sleepless in Seattle</em> and <em>You’ve Got Mail</em>, lives a more quiet life outside of the spotlight these days.</p> <blockquote class="instagram-media" style="background: #FFF; border: 0; border-radius: 3px; box-shadow: 0 0 1px 0 rgba(0,0,0,0.5),0 1px 10px 0 rgba(0,0,0,0.15); margin: 1px; max-width: 540px; min-width: 326px; padding: 0; width: calc(100% - 2px);" data-instgrm-captioned="" data-instgrm-permalink="https://www.instagram.com/p/Cr1TCUeO8e3/?utm_source=ig_embed&amp;utm_campaign=loading" data-instgrm-version="14"> <div style="padding: 16px;"> <div style="display: flex; flex-direction: row; align-items: center;"> <div style="background-color: #f4f4f4; border-radius: 50%; flex-grow: 0; height: 40px; margin-right: 14px; width: 40px;"> </div> <div style="display: flex; flex-direction: column; flex-grow: 1; justify-content: center;"> <div style="background-color: #f4f4f4; border-radius: 4px; flex-grow: 0; height: 14px; margin-bottom: 6px; width: 100px;"> </div> <div style="background-color: #f4f4f4; border-radius: 4px; flex-grow: 0; height: 14px; width: 60px;"> </div> </div> </div> <div style="padding: 19% 0;"> </div> <div style="display: block; height: 50px; margin: 0 auto 12px; width: 50px;"> </div> <div style="padding-top: 8px;"> <div style="color: #3897f0; font-family: Arial,sans-serif; font-size: 14px; font-style: normal; font-weight: 550; line-height: 18px;">View this post on Instagram</div> </div> <div style="padding: 12.5% 0;"> </div> <div style="display: flex; flex-direction: row; margin-bottom: 14px; align-items: center;"> <div> <div style="background-color: #f4f4f4; border-radius: 50%; height: 12.5px; width: 12.5px; transform: translateX(0px) translateY(7px);"> </div> <div style="background-color: #f4f4f4; height: 12.5px; transform: rotate(-45deg) translateX(3px) translateY(1px); width: 12.5px; flex-grow: 0; margin-right: 14px; margin-left: 2px;"> </div> <div style="background-color: #f4f4f4; border-radius: 50%; height: 12.5px; width: 12.5px; transform: translateX(9px) translateY(-18px);"> </div> </div> <div style="margin-left: 8px;"> <div style="background-color: #f4f4f4; border-radius: 50%; flex-grow: 0; height: 20px; width: 20px;"> </div> <div style="width: 0; height: 0; border-top: 2px solid transparent; border-left: 6px solid #f4f4f4; border-bottom: 2px solid transparent; transform: translateX(16px) translateY(-4px) rotate(30deg);"> </div> </div> <div style="margin-left: auto;"> <div style="width: 0px; border-top: 8px solid #F4F4F4; border-right: 8px solid transparent; transform: translateY(16px);"> </div> <div style="background-color: #f4f4f4; flex-grow: 0; height: 12px; width: 16px; transform: translateY(-4px);"> </div> <div style="width: 0; height: 0; border-top: 8px solid #F4F4F4; border-left: 8px solid transparent; transform: translateY(-4px) translateX(8px);"> </div> </div> </div> <div style="display: flex; flex-direction: column; flex-grow: 1; justify-content: center; margin-bottom: 24px;"> <div style="background-color: #f4f4f4; border-radius: 4px; flex-grow: 0; height: 14px; margin-bottom: 6px; width: 224px;"> </div> <div style="background-color: #f4f4f4; border-radius: 4px; flex-grow: 0; height: 14px; width: 144px;"> </div> </div> <p style="color: #c9c8cd; font-family: Arial,sans-serif; font-size: 14px; line-height: 17px; margin-bottom: 0; margin-top: 8px; overflow: hidden; padding: 8px 0 7px; text-align: center; text-overflow: ellipsis; white-space: nowrap;"><a style="color: #c9c8cd; font-family: Arial,sans-serif; font-size: 14px; font-style: normal; font-weight: normal; line-height: 17px; text-decoration: none;" href="https://www.instagram.com/p/Cr1TCUeO8e3/?utm_source=ig_embed&amp;utm_campaign=loading" target="_blank" rel="noopener">A post shared by Tracy Pollan (@tracy.pollan)</a></p> </div> </blockquote> <p>Ryan hasn’t appeared on screen since the 2015 film <em>Ithaca</em>, which she also directed. </p> <p>However, she is plotting a return to screens later this year, with Ryan starring in and directing the film <em>What Happens Later</em>, which is currently in production.</p> <p>Ryan was among a star-studded group of famous friends supporting J. Fox for the premiere of his doco, with stars including Bill Murray, Denis Leary, Joan Jett, Katie Couric, Mariska Hargitay, and Debra Messing. </p> <p>The screening of the documentary comes after Michael J. Fox <a href="https://oversixty.co.nz/health/caring/i-m-not-gonna-be-80-michael-j-fox-s-tragic-admission" target="_blank" rel="noopener">admitted</a> that his battle with the disease is getting more difficult. </p> <p style="font-size: 16px; box-sizing: border-box; margin-top: 0px; margin-bottom: 1rem; caret-color: #212529; color: #212529; font-family: -apple-system, BlinkMacSystemFont, 'Segoe UI', Roboto, 'Helvetica Neue', Arial, sans-serif, 'Apple Color Emoji', 'Segoe UI Emoji', 'Segoe UI Symbol', 'Noto Color Emoji';">“I’m not gonna be 80,” he said in a preview for an upcoming episode of the American current affairs program <em style="box-sizing: border-box;">CBS Sunday Mornin</em>g, according to <em style="box-sizing: border-box;">Page Six</em>.</p> <p style="font-size: 16px; box-sizing: border-box; margin-top: 0px; margin-bottom: 1rem; caret-color: #212529; color: #212529; font-family: -apple-system, BlinkMacSystemFont, 'Segoe UI', Roboto, 'Helvetica Neue', Arial, sans-serif, 'Apple Color Emoji', 'Segoe UI Emoji', 'Segoe UI Symbol', 'Noto Color Emoji';">In the clip, Journalist Jane Pauley tells Fox that he has “not squandered” but that his condition will eventually “make the call” as to when it’s his time to go.</p> <p style="font-size: 16px; box-sizing: border-box; margin-top: 0px; margin-bottom: 1rem; caret-color: #212529; color: #212529; font-family: -apple-system, BlinkMacSystemFont, 'Segoe UI', Roboto, 'Helvetica Neue', Arial, sans-serif, 'Apple Color Emoji', 'Segoe UI Emoji', 'Segoe UI Symbol', 'Noto Color Emoji';">“Yeah, it’s, it’s banging on the door,” the actor said.</p> <p style="font-size: 16px; box-sizing: border-box; margin-top: 0px; margin-bottom: 1rem; caret-color: #212529; color: #212529; font-family: -apple-system, BlinkMacSystemFont, 'Segoe UI', Roboto, 'Helvetica Neue', Arial, sans-serif, 'Apple Color Emoji', 'Segoe UI Emoji', 'Segoe UI Symbol', 'Noto Color Emoji';">“I’m not gonna lie. It’s gettin’ hard, it’s gettin’ harder. It’s gettin’ tougher. Every day it’s tougher.”</p> <p style="font-size: 16px; box-sizing: border-box; margin-top: 0px; margin-bottom: 1rem; caret-color: #212529; color: #212529; font-family: -apple-system, BlinkMacSystemFont, 'Segoe UI', Roboto, 'Helvetica Neue', Arial, sans-serif, 'Apple Color Emoji', 'Segoe UI Emoji', 'Segoe UI Symbol', 'Noto Color Emoji';"><em>Image credits: Instagram</em></p>

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“I didn’t come to play”: Bruce Willis’ wife smacks down trolls

<p>Emma Heming Willis has been forced to shut down the heartless trolls targeting her in the wake of husband Bruce Willis’ dementia diagnosis. </p> <p>In a video posted to social media, the 44-year-old model throws away claims that she’s been using Bruce for her “five minutes” of fame, and instead declares that she will turn them “into 10 because I'm always going to advocate for my husband.”</p> <p>Emma - who has spoken openly about her support for Bruce - once again stressed that she would be using this opportunity to raise awareness, before she was “going to turn my grief, and my anger, and my sadness, and do something good, around something that feels less than.”</p> <p>“So, watch this space,” she said, “because I didn’t come to play.”</p> <p>Emma’s message comes barely three days after she <a href="https://www.oversixty.com.au/health/caring/any-tips-bruce-willis-wife-posts-heartfelt-plea" target="_blank" rel="noopener">reached out to followers</a>, “caregivers, or dementia care specialists navigating this world” alike, seeking advice on how to help “get your loved ones out in the world safely”.</p> <p>“If you are someone who is looking after someone who has dementia,” she said in the clip, “you know how difficult and how stressful it can be, just to get them out into the world and navigate them safely - even just to get a cup of coffee.”</p> <p>And while the response to her post was overwhelmingly positive, the cruel few determined to make things worse for everyone just had to say their piece, and to prompt Emma’s fight back. </p> <p>They were nowhere to be seen in her latest post - possibly hiding with their tails tucked between their legs - and instead, she was once more met with an outpouring of support. </p> <blockquote class="instagram-media" style="background: #FFF; border: 0; border-radius: 3px; box-shadow: 0 0 1px 0 rgba(0,0,0,0.5),0 1px 10px 0 rgba(0,0,0,0.15); margin: 1px; max-width: 540px; min-width: 326px; padding: 0; width: calc(100% - 2px);" data-instgrm-captioned="" data-instgrm-permalink="https://www.instagram.com/reel/Cpf2KBOOVc7/?utm_source=ig_embed&amp;utm_campaign=loading" data-instgrm-version="14"> <div style="padding: 16px;"> <div style="display: flex; flex-direction: row; align-items: center;"> <div style="background-color: #f4f4f4; border-radius: 50%; flex-grow: 0; height: 40px; margin-right: 14px; width: 40px;"> </div> <div style="display: flex; flex-direction: column; flex-grow: 1; justify-content: center;"> <div style="background-color: #f4f4f4; border-radius: 4px; flex-grow: 0; height: 14px; margin-bottom: 6px; width: 100px;"> </div> <div style="background-color: #f4f4f4; border-radius: 4px; flex-grow: 0; height: 14px; width: 60px;"> </div> </div> </div> <div style="padding: 19% 0;"> </div> <div style="display: block; height: 50px; margin: 0 auto 12px; width: 50px;"> </div> <div style="padding-top: 8px;"> <div style="color: #3897f0; font-family: Arial,sans-serif; font-size: 14px; font-style: normal; font-weight: 550; line-height: 18px;">View this post on Instagram</div> </div> <div style="padding: 12.5% 0;"> </div> <div style="display: flex; flex-direction: row; margin-bottom: 14px; align-items: center;"> <div> <div style="background-color: #f4f4f4; border-radius: 50%; height: 12.5px; width: 12.5px; transform: translateX(0px) translateY(7px);"> </div> <div style="background-color: #f4f4f4; height: 12.5px; transform: rotate(-45deg) translateX(3px) translateY(1px); width: 12.5px; flex-grow: 0; margin-right: 14px; margin-left: 2px;"> </div> <div style="background-color: #f4f4f4; border-radius: 50%; height: 12.5px; width: 12.5px; transform: translateX(9px) translateY(-18px);"> </div> </div> <div style="margin-left: 8px;"> <div style="background-color: #f4f4f4; border-radius: 50%; flex-grow: 0; height: 20px; width: 20px;"> </div> <div style="width: 0; height: 0; border-top: 2px solid transparent; border-left: 6px solid #f4f4f4; border-bottom: 2px solid transparent; transform: translateX(16px) translateY(-4px) rotate(30deg);"> </div> </div> <div style="margin-left: auto;"> <div style="width: 0px; border-top: 8px solid #F4F4F4; border-right: 8px solid transparent; transform: translateY(16px);"> </div> <div style="background-color: #f4f4f4; flex-grow: 0; height: 12px; width: 16px; transform: translateY(-4px);"> </div> <div style="width: 0; height: 0; border-top: 8px solid #F4F4F4; border-left: 8px solid transparent; transform: translateY(-4px) translateX(8px);"> </div> </div> </div> <div style="display: flex; flex-direction: column; flex-grow: 1; justify-content: center; margin-bottom: 24px;"> <div style="background-color: #f4f4f4; border-radius: 4px; flex-grow: 0; height: 14px; margin-bottom: 6px; width: 224px;"> </div> <div style="background-color: #f4f4f4; border-radius: 4px; flex-grow: 0; height: 14px; width: 144px;"> </div> </div> <p style="color: #c9c8cd; font-family: Arial,sans-serif; font-size: 14px; line-height: 17px; margin-bottom: 0; margin-top: 8px; overflow: hidden; padding: 8px 0 7px; text-align: center; text-overflow: ellipsis; white-space: nowrap;"><a style="color: #c9c8cd; font-family: Arial,sans-serif; font-size: 14px; font-style: normal; font-weight: normal; line-height: 17px; text-decoration: none;" href="https://www.instagram.com/reel/Cpf2KBOOVc7/?utm_source=ig_embed&amp;utm_campaign=loading" target="_blank" rel="noopener">A post shared by Emma Heming Willis (@emmahemingwillis)</a></p> </div> </blockquote> <p>“HELL YES!” wrote Bruce’s eldest daughter, Rumer. “I am so so proud of you!”</p> <p>“As a Registered Nurse, I appreciate you being a patient advocate for your husband,” said another, before requesting Emma do the exact opposite of what the internet trolls craved, “please don’t stop, we need people like you in the medical community!!! Hang in there. You are doing beautiful.”</p> <p>One now-supporter, who admitted that her previous perception of Emma had been negative and generated by the paparazzi, said, “Good for you … so sorry for what you and your family are going through. You truly are a woman of substance and power. I will be listening and learning.”</p> <p>“You go girl! There is an army of people behind you,” urged another. </p> <p>“Having to deal with your husband’s illness is bad enough but also having to deal with rude and intrusive press is unimaginable,” one said. “Keep shouting, keep protecting. He deserves the best life imaginable!!”</p> <p>“Emma, how sad is it when people don't get it,” another wrote, “this is such a problem in our society today...the lack of empathy. Why would people choose to believe that this is something you are doing for attention? Your family is going through hell - their foundation rocked, but it's a ploy??? Advocating for and protecting your family is what mama bears do!!!”</p> <p><em>Images: Instagram</em></p>

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For some LGBTQ+ older people, events like World Pride can be isolating – we need to better understand how to support them

<p><a href="https://sydneyworldpride.com/">World Pride</a> has come to Sydney, with the annual <a href="https://sydneyworldpride.com/events/mardi-gras-parade/">Mardi Gras Parade</a> on Saturday having returned to its Oxford Street home for the first time in three years.</p> <p>The 17-day festival is expected to host 500,000 participants over more than 300 events. It is an opportunity to celebrate all things queer, and a good time to take stock of the changes LGBTQ+ older people have experienced, and the challenges they continue to face.</p> <p>LGBTQ+ people aged in their 70s, 80s and 90s have witnessed extraordinary social change regarding gender and sexual diversity. For example, in Australia, same-sex marriage is now legal, <a href="https://www.scientificamerican.com/article/where-transgender-is-no-longer-a-diagnosis/">Gender Identity Disorder</a> has been removed as a clinical diagnosis, and all states have an equal age of consent for homosexual and heterosexual sex.</p> <p>These have been hard-fought gains after many years of adversity and advocacy on the part of LGBTQ+ older people, among others.</p> <p>Each year, the <a href="https://www.78ers.org.au/">78ers</a> – who were involved in the Sydney marches and protests between June and August 1978 – take pride of place towards the front of the parade.</p> <h2>Loneliness and social isolation</h2> <p>Despite these achievements, the consequences of living most of one’s life in a homophobic and transphobic society have been considerable, particularly in terms of mental illness and social isolation.</p> <p><a href="https://www.tandfonline.com/doi/abs/10.1080/00918369.2021.2005999?journalCode=wjhm20">Australian</a> and <a href="https://pubmed.ncbi.nlm.nih.gov/34326557/">US</a> research indicates loneliness is more common among lesbian, gay and bisexual older people than the general population. This is particularly so for those who live alone and are not in a relationship. Similar findings are reported in relation to <a href="https://www.lgbtagingcenter.org/resources/pdfs/LGBT%20Aging%20and%20Health%20Report_final.pdf">transgender older people</a>, although more research is needed.</p> <p><a href="https://www.tandfonline.com/doi/abs/10.1080/00918369.2021.2005999?journalCode=wjhm20">Loneliness</a> is also more common among lesbian and gay older people who are disconnected from LGBTQ+ communities and who hold negative attitudes towards their own same-sex attraction.</p> <p>For LGBTQ+ older people experiencing social isolation and loneliness, what might be their experience of watching World Pride from a distance? What might it be like navigating rainbow paraphernalia while shopping at <a href="https://www.coles.com.au/about/sustainability/better-together/our-team/pride">Coles</a> (a World Pride partner)? How might they perceive the glitz and glamour of the Mardi Gras Parade?</p> <p>World Pride may be challenging for those who don’t feel an attachment to LGBTQ+ communities or who feel negative about their own sexuality. And this may reinforce a sense of disconnection.</p> <p>But some may gain comfort from witnessing the sense of community on display. It may even strengthen their perceived connection to other LGBTQ+ people. And, for those who are not open about their sexuality or authentic gender, it may support their journey to “come out” later in life.</p> <h2>The impact of discrimination</h2> <p>For many LGBTQ+ older people, the experience of discrimination remains very real in their lives. <a href="https://pubmed.ncbi.nlm.nih.gov/33770516/">Past and recent discrimination</a> leads to delays seeking treatment and support, simply because people expect to be discriminated against when accessing services.</p> <p>In Australia, previous discrimination has been found to predict <a href="https://www.tandfonline.com/doi/abs/10.1080/00918369.2021.2005999?journalCode=wjhm20">loneliness</a> and <a href="https://www.cambridge.org/core/journals/ageing-and-society/article/abs/recent-versus-lifetime-experiences-of-discrimination-and-the-mental-and-physical-health-of-older-lesbian-women-and-gay-men/90988215582414EA0AB7936B6384FC97">lower mental health</a> among older lesbian and gay people. In the US, <a href="https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6779303/">microaggressions</a> – small everyday interactions that reinforce the experience of being “other” – have predicted greater impairment, higher rates of depression and lower quality of life among LGBTQ+ people aged 80 and over.</p> <p>There remain major gaps in evidence on the issues faced by LGBTQ+ older people, particularly for bisexual, queer, transgender and nonbinary older people. This is mainly due to the failure to systematically collect inclusive data on gender and sexual diversity, through variables such as those recommended by the <a href="https://www.abs.gov.au/statistics/standards/standard-sex-gender-variations-sex-characteristics-and-sexual-orientation-variables/latest-release">Australian Bureau of Statistics</a>.</p> <h2>Strengths and resilience</h2> <p>This year, older people seemed to occupy a more prominent place in the Mardi Gras Parade. Perhaps this is because of the natural ageing of our community activists. Older people were also represented in the wider World Pride festival, such as in the theatre production <a href="https://sydneyworldpride.com/events/all-the-sex-ive-ever-had/">All the Sex I’ve Ever Had</a>, in which older Sydney residents reflect on the evolution of their sexuality over the course of their lives.</p> <p>A festival like World Pride showcases the strengths and resilience of LGBTQ+ people and communities. The organisation of such an event should not be underestimated. This reflects LGBTQ+ people’s high level of civic engagement and commitment to giving back to society, as demonstrated by their greater likelihood of being <a href="https://www.tandfonline.com/doi/abs/10.1080/0312407X.2021.1899256">volunteers</a> and <a href="https://www.caregiving.org/wp-content/uploads/2020/05/2015_CaregivingintheUS_Final-Report-June-4_WEB.pdf">caregivers</a>. And the contribution of volunteers and caregivers during the HIV/AIDS crisis of the 1980s and ‘90s is not forgotten.</p> <p>LGBTQ+ older people generally are <a href="https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5241752/">resilient and maintain good health</a>. Many report increased <a href="https://link.springer.com/article/10.1007/s13178-021-00653-z">confidence and self-esteem</a>, compared with when they were younger. And many have created their own families – their families of choice – to support each other in later life.</p> <p>But we don’t know enough about their needs and how to provide them with inclusive services as they get older. World Pride is an opportunity to reflect on the hard-won gains but not ignore the challenges ahead.</p> <p><em>Image credits: Getty Images</em></p> <p><em>This article originally appeared on <a href="https://theconversation.com/for-some-lgbtq-older-people-events-like-world-pride-can-be-isolating-we-need-to-better-understand-how-to-support-them-200533" target="_blank" rel="noopener">The Conversation</a>. </em></p>

Caring

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Support is the best medicine

<p>Sharing your experience and talking with others when ill can be very good for your wellbeing. Here’s why support groups are great.</p> <p>Good friends may help your life last longer as they’ll boost your self-esteem, offer companionship and provide support when you need it. A study by the Centre for Ageing Studies at Flinders University backed this up by following 1500 older Aussies for 10 years and found that those who had a large network of friends outlived those with fewer friends by 22 per cent.</p> <p>When you know you can count on someone to help or provide support when you most need it, it can make the world of difference. However, sometimes people may not live near close friends or have found it difficult to develop a strong community group around them. When a person becomes ill, a good network can be the best medicine for helping to keep a person’s spirits up, so joining a support group could be the perfect solution.</p> <p>Another study, completed in 2005 and published in health journal <em>Cancer</em>, found that out of the 61 women who had advanced ovarian cancer those with support networks had much lower levels of a protein linked with more aggressive types of cancer. Women who didn’t have as much social support around them had levels of the protein that were a whopping 70 per cent higher!</p> <p>Support groups can bring people together who are facing similar issues, ranging from major life changes to illness. Many people join support groups because sharing experiences with people who are going through the same battles can be incredibly helpful and make a person feel like they’re not alone.</p> <p>Well-known Australian cancer survivor, Dr Ian Gawler, who was diagnosed with bone cancer, had his right leg amputated and then had to battle the disease again later that same year, believes having a positive and practical attitude can help in many ways when battling disease.</p> <p>According to a 2005 study by The Cancer Council, there are health benefits associated with being part of a health support group. These include: improvements in coping and adaptation, reductions in psychological stress, enhanced self-esteem and even positive effects on immunological response.</p> <p>Just ask Terri-Ann Carter, a Queenslander who underwent surgery and chemotherapy for a lump on her neck. She started an online support group called Gladstone Cancer Friends as a way to cope with the isolation and stress of going through cancer treatment. For cancer sufferers, two big fears are one of relapse and social isolation. Whether online or in person, a support group can help a person cope with these two alienating factors.</p> <p>When it comes to your health, nothing should be taken for granted. Together with surrounding yourself with the love and support of family, friends or new acquaintances from a support group, it’s always worth getting good health insurance.</p> <p><strong>How to find a support group:</strong></p> <p><strong>Ask your doctor or health care provider.</strong> They may be able to point you in the right direction of a support group near you.</p> <p><strong>Go online.</strong> There are many over-60s who live in rural or regional areas, so more people are turning to the internet to connect with others for support and advice. Social media sites, such as Facebook, have become very popular for people to comfortably share their stories and experience in an open and supportive forum.</p> <p><strong>Get in touch with local centres.</strong> Look to your local community halls, libraries and even supermarket notice boards for possible support groups in your area.     </p> <p><strong>Look to state or national bodies.</strong> Organisations for a particular illness or issue usually have a directory of the support groups in various local communities for people to be redirected to. Take a look and find one that’s close to you.</p> <p><strong>Can’t find one? Start your own.</strong> If there’s no support group near you, why not start your own? Look to start an online group via Facebook or post announcements on a board in your local medical centre or hospital to spread the word.</p> <p><em>Image: Getty</em></p>

Caring

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New perspectives on navigating grief for owners of companion animals

<p>The loss of a pet can be difficult, but the latest research suggests we can do better to help owners navigate their way through the grief process.</p> <p>For many, the pandemic resulted in more time spent in the company of pets while working from home and because of restrictions designed to limit the movement of people. In many cases, pets became key to maintaining a sense of normality, routine and motivation, not to mention <a href="https://cosmosmagazine.com/nature/dogs-sense-of-smell-detect-human-stress/" target="_blank" rel="noreferrer noopener">providing company</a> during times of social and physical isolation.</p> <p>Strangely, though, as the research highlights, society has a bias towards supporting certain circumstances of grieving over others.</p> <p>According to the authors of the review, published in <em>Human</em>–<em>Animal Interactions</em>, some types of trauma such as the loss of a pet, <a href="https://cosmosmagazine.com/people/society/can-we-blame-the-famous-for-their-suicides/" target="_blank" rel="noreferrer noopener">death by suicide</a>, a lost pregnancy or miscarriage and death from AIDS, can be stigmatic for the bereaved. These types of loss tend to be underacknowledged by others or given less attention or empathy.</p> <p>“When relationships are not valued by society, individuals are more likely to experience disenfranchised grief after a loss that cannot be resolved and may become complicated grief,” said Colleen Rolland, President and pet loss grief specialist for <a href="https://www.aplb.org/" target="_blank" rel="noreferrer noopener">Association for Pet Loss and Bereavement</a> (APLB).</p> <p>This stigma can interrupt the natural process of grieving, meaning that pet owners often ‘go it alone’, without social support when dealing with the loss of their companion animal.</p> <p>“The present review builds on research in the field of pet loss and human bereavement and factors in the impact of the COVID-19 pandemic on human-animal attachment,” says Dr Michelle Crossley, an Assistant Professor at Rhode Island College in the US.</p> <p>“A goal of the present review is to provide counsellors with perspectives to consider in their practice when working with clients who have attachments to their companion animals. It also aims to acknowledge the therapeutic benefits of working through the grief process to resolution as a way to continue the bond with a deceased pet.”</p> <p>The review presents practical ways in which counsellors can help people grieving the loss of a pet through in-person and online approaches, such as group sessions and web-based chatrooms – “counselling interventions and coping strategies already being used in the therapeutic space,” notes Crossley.</p> <p>Practical activities such as providing safe spaces and materials to paint, draw or write about their anxieties and fears about loss are effective tools for helping children and adults navigate the grief process.</p> <p><em><a href="https://petsandpeople.com.au/about/" target="_blank" rel="noreferrer noopener">Pets and People</a>,</em> an online initiative founded by Dr Michael O’Donoghue and Penny Carroll, seeks to provide pet owners with resources and information across a whole host of issues associated with pet loss, including those discussing social stigmas. It also provides links to counsellors with experience in pet loss and lists Australian and New Zealand numbers for the Pet Loss Support Line which connects callers with counsellors.</p> <p><img id="cosmos-post-tracker" style="opacity: 0; height: 1px!important; width: 1px!important; border: 0!important; position: absolute!important; z-index: -1!important;" src="https://syndication.cosmosmagazine.com/?id=226139&amp;title=New+perspectives+on+navigating+grief+for+owners+of+companion+animals" width="1" height="1" data-spai-target="src" data-spai-orig="" data-spai-exclude="nocdn" /></p> <div id="contributors"> <p><em><a href="https://cosmosmagazine.com/australia/new-perspective-navigating-grief-pets/" target="_blank" rel="noopener">This article</a> was originally published on Cosmos Magazine and was written by Clare Kenyon. Clare Kenyon is a science journalist for Cosmos. </em></p> <p><em>Image: Getty Images</em></p> </div>

Family & Pets

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"If we stop communicating, Putin wins. Propaganda wins": how a Norwegian organisation is supporting Russian protest art

<p>As an international student at the Bolshoi Ballet Academy in Moscow in 2012, I remember studying <em>Rekviem</em> (requiem) by Russian poet <a href="https://www.poetryfoundation.org/poets/anna-akhmatova">Anna Ahkmatova</a>, an elegy she penned in secret as a tribute to the countless victims of Stalin’s murderous purges. </p> <p>Akhmatova’s writing revived the atrocities, delivering their darkness into the light.</p> <p>Her words spoke of constant fear permeating lives; of distrust, anxiety and betrayal; of the secret police arriving to drag you or your family away. </p> <p>To avoid detection and retribution, Ahkmatova whispered the poem to her friends who committed it to memory. She burned the incriminating scraps of paper.</p> <p>In the first four-and-a-half months following Putin’s attack against Ukraine, over 13,000 anti-war protesters <a href="https://ovdinfo.org/articles/2022/03/07/cracked-heads-and-tasers-results-march-6th-anti-war-protests">were detained</a> in Russia.</p> <p>Some estimates are that <a href="https://meduza.io/feature/2022/05/07/skolko-lyudey-uehalo-iz-rossii-iz-za-voyny-oni-uzhe-nikogda-ne-vernutsya-mozhno-li-eto-schitat-ocherednoy-volnoy-emigratsii">hundreds of thousands</a> fled Russia in early 2022, among them thousands of artists who no longer felt safe in the climate of increasing censorship.</p> <p>Some of these artists have found themselves in Kirkenes, a small Norwegian town 15 kilometres from the Russian border.</p> <h2>Russia’s protest art</h2> <p>Russian and Soviet artists have a long history of art as protest.</p> <p>The poem <em><a href="https://poets.org/poem/stalin-epigram">Stalin’s Epigram</a></em> (1933) authored by <a href="https://www.poetryfoundation.org/poets/osip-mandelstam">Osip Mandelstam</a> depicted Stalin as a gleeful killer. Authorities imprisoned and tortured Mandelstam, then deported the poet to a remote village near the Ural Mountains. </p> <p>After returning from exile, he persisted writing about Stalin until he was sent to a labour camp in Siberia, where he died in 1938 at the age of 47. </p> <p>Under the comparatively liberal rule of Stalin’s successor <a href="https://www.jstor.org/stable/131346?seq=1#metadata_info_tab_contents">Nikita Khrushchev</a> from 1953, the Soviet Union began to enjoy previously unimagined freedoms.</p> <p>Protest art reflected these newfound liberties, becoming increasingly provocative and experimental. </p> <p>Many famous art movements surfaced during this period, including <a href="https://www.moscowart.net/art.html?id=SotsArt">Sots Art</a> — a fusion between Soviet and Pop Art — as Russian artists tested the boundaries, exposing the grim realities and unhappiness of life under Stalin’s regime. </p> <p>In 1962, the legendary composer Shostakovich set his <a href="https://theconversation.com/decoding-the-music-masterpieces-shostakovichs-babi-yar-82819">13th symphony</a> to a series of poems by his contemporary, Yevgeny Yevtushenko. One of these poems was Babi Yar, which criticised the Soviet government for concealing the <a href="https://www.smithsonianmag.com/history/babi-yar-ukraine-massacre-holocaust-180979687/">massacre of 33,371 Jews</a> in a mass grave outside Kyiv.</p> <p>In contemporary Russia, <a href="https://www.nytimes.com/2022/05/10/world/europe/pussy-riot-russia-escape.html">Pussy Riot</a> came to the attention of the world in 2012 when members stepped behind the altar in Moscow’s golden-domed Christ the Saviour Cathedral wearing neon-coloured balaclavas to deliver a “punk rock prayer”. </p> <p>Their voices echoed off the cavernous, hand-painted ceilings, raging against Putin’s affiliation with the Orthodox church and the homophobic, anti-feminist policies that followed. </p> <p>They were sentenced to two years imprisonment.</p> <p>Today, <a href="https://artreview.com/amidst-a-crackdown-russia-anti-war-artists-and-activists-try-to-reclaim-the-streets/">pictures from Russia</a> reveal anonymous anti-war graffiti on the sides of buildings, “no war” chiselled into a frozen river, and yellow and blue chrysanthemums and tulips left at the feet of Soviet war memorials.</p> <h2>Cross-border collaborations</h2> <p><a href="https://www.pikene.no/">Pikene på Broen</a> (girls on the bridge) is an arts collective based in Kirkenes.</p> <p>They have spent the past 25 years curating art projects to promote cross-cultural collaboration and tackle political problems in the borderland region. </p> <p>Pikene på Broen is host to the the annual art festival <a href="https://en.wikipedia.org/wiki/Barents_Sea">Barents</a> Spektakel (spectacle), an international artist residency including Russian, Norwegian and Finnish creatives, the gallery and project space Terminal B in Kirkenes town, and the debate series Transborder Café.</p> <p>The venue has become a hub for open discussions relating to current political and cultural issues, drawing contributions from artists, musicians, writers, politicians and researchers.</p> <p>Evgeny Goman, an independent theatre director from Murmansk, Russia – about 200 kilometres from Kirkenes – has been collaborating with Pikene på Broen for over 10 years.</p> <p>After moving to Norway in early 2022, Pikene på Broen worked with Goman to organise Kvartirnik (from the word kvartira, meaning apartment), an online talk group for Russian and Norwegian artists to exchange ideas. </p> <p>Following Putin’s attack on Ukraine, Kvartirnik shifted to an underground movement for dissident artists. Ironically, the name Kvartirnik derives from the clandestine concerts arranged <a href="https://www.ciee.org/go-abroad/college-study-abroad/blog/ciee-kvartirnik-understanding-through-music">in people’s apartments</a> during the Soviet Era when musicians were banned from performing in public.</p> <p><a href="http://deadrevolution.tilda.ws/?fbclid=IwAR2PcaqY7VdLtS1zYUu4JCbD6F36KZ8JKv_FEIYsNeSTE4aKokhV7YpITas">Party of the Dead</a> is one of several Russian protest art groups who participated in Kvartirnik. </p> <p>Pictures from the snow-decked Piskaryovskoye Cemetery in Saint Petersburg reveal members dressed as skeletons, holding placards reading: “are there not enough corpses?”.</p> <p>I spoke with Goman about the art coming out of Kvartirnik today.</p> <p>“In peaceful times, art is more about entertaining,” he says. </p> <p>"But in war and conflict, art is more important because it’s the language we use to express our pain. And through metaphors and symbolism, it allows us to speak about things that are censored."</p> <h2>Countering propaganda</h2> <p>Kvartirnik collaborators in Murmansk have also produced and distributed <a href="https://en.wikipedia.org/wiki/Samizdat">Samizdat</a> (self-publishing), an anonymous newsletter containing art suppressed by the state. </p> <p>“We have to be really smart now about how we do things in Russia,” Goman says. “Subtle.”</p> <p>Goman is pessimistic about Russia’s future. But he believes the key to moving forward is keeping communication open. He tells me the West’s decision to <a href="https://www.theatlantic.com/ideas/archive/2022/03/right-way-cancel-russia/627115/">ban Russian culture</a> has backfired on their plan to pressure Putin into ending the war against Ukraine. </p> <p>Instead, he says, the divide is steadily increasing, leaving dissident artists isolated inside a country operating on fear and propaganda, furthering Putin’s agenda. </p> <p>“Putin wants us to not affect Russian minds. And that’s why we have to keep the dialogue going,” he says of the importance of cross-border collaborations like those he has undertaken in Kirkenes.</p> <p>"If we stop communicating, Putin wins. Propaganda wins."</p> <p><em>Image credits: Getty Images</em></p> <p><em>This article originally appeared on <a href="https://theconversation.com/if-we-stop-communicating-putin-wins-propaganda-wins-how-a-norwegian-organisation-is-supporting-russian-protest-art-186911" target="_blank" rel="noopener">The Conversation</a>. </em></p>

Art

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"Let's dance!": Women let loose in support of partying PM

<p>Women all over the world are sharing their support for Finland's partying Prime Minister by sharing videos of themselves dancing online. </p> <p>The Finnish PM, 36-year-old Sanna Marin, made headlines in recent weeks after leaked footage of her dancing at an event with celebrity friends went viral. </p> <p>The videos, which were taken as she danced with friends in two private apartments and then at a nightclub in Helsinki, have led to her being criticised and forced to denounce the use of drugs on her night out. </p> <p>She also was questioned about her alcohol intake on the night in question, and while she denies waking with a hangover or drinking to excess, she said she has as much right to a night out as anyone else, saying, "Everyone needs a fun and relaxed evening out."</p> <p>As the controversy around her party night continues, professional women around the world have been dancing in solidarity, as they stand with the Finnish PM and her right to a night off the top job. </p> <p>A clip shared by the Danish magazine Alt on Instagram showed several women celebrating, with some clubbing or at home to show their support for the Prime Minister. </p> <p>The magazine said they had "leaked" their own dancing videos online, in reference to the video of the prime minister, which was leaked last week. </p> <blockquote class="instagram-media" style="background: #FFF; border: 0; border-radius: 3px; box-shadow: 0 0 1px 0 rgba(0,0,0,0.5),0 1px 10px 0 rgba(0,0,0,0.15); margin: 1px; max-width: 540px; min-width: 326px; padding: 0; width: calc(100% - 2px);" data-instgrm-permalink="https://www.instagram.com/reel/ChcBl-LqcRH/?utm_source=ig_embed&amp;utm_campaign=loading" data-instgrm-version="14"> <div style="padding: 16px;"> <div style="display: flex; flex-direction: row; align-items: center;"> <div style="background-color: #f4f4f4; border-radius: 50%; flex-grow: 0; height: 40px; margin-right: 14px; width: 40px;"> </div> <div style="display: flex; flex-direction: column; flex-grow: 1; justify-content: center;"> <div style="background-color: #f4f4f4; border-radius: 4px; flex-grow: 0; height: 14px; margin-bottom: 6px; width: 100px;"> </div> <div style="background-color: #f4f4f4; border-radius: 4px; flex-grow: 0; height: 14px; width: 60px;"> </div> </div> </div> <div style="padding: 19% 0;"> </div> <div style="display: block; height: 50px; margin: 0 auto 12px; width: 50px;"> </div> <div style="padding-top: 8px;"> <div style="color: #3897f0; font-family: Arial,sans-serif; font-size: 14px; font-style: normal; font-weight: 550; line-height: 18px;">View this post on Instagram</div> </div> <div style="padding: 12.5% 0;"> </div> <div style="display: flex; flex-direction: row; margin-bottom: 14px; align-items: center;"> <div> <div style="background-color: #f4f4f4; border-radius: 50%; height: 12.5px; width: 12.5px; transform: translateX(0px) translateY(7px);"> </div> <div style="background-color: #f4f4f4; height: 12.5px; transform: rotate(-45deg) translateX(3px) translateY(1px); width: 12.5px; flex-grow: 0; margin-right: 14px; margin-left: 2px;"> </div> <div style="background-color: #f4f4f4; border-radius: 50%; height: 12.5px; width: 12.5px; transform: translateX(9px) translateY(-18px);"> </div> </div> <div style="margin-left: 8px;"> <div style="background-color: #f4f4f4; border-radius: 50%; flex-grow: 0; height: 20px; width: 20px;"> </div> <div style="width: 0; height: 0; border-top: 2px solid transparent; border-left: 6px solid #f4f4f4; border-bottom: 2px solid transparent; transform: translateX(16px) translateY(-4px) rotate(30deg);"> </div> </div> <div style="margin-left: auto;"> <div style="width: 0px; border-top: 8px solid #F4F4F4; border-right: 8px solid transparent; transform: translateY(16px);"> </div> <div style="background-color: #f4f4f4; flex-grow: 0; height: 12px; width: 16px; transform: translateY(-4px);"> </div> <div style="width: 0; height: 0; border-top: 8px solid #F4F4F4; border-left: 8px solid transparent; transform: translateY(-4px) translateX(8px);"> </div> </div> </div> <div style="display: flex; flex-direction: column; flex-grow: 1; justify-content: center; margin-bottom: 24px;"> <div style="background-color: #f4f4f4; border-radius: 4px; flex-grow: 0; height: 14px; margin-bottom: 6px; width: 224px;"> </div> <div style="background-color: #f4f4f4; border-radius: 4px; flex-grow: 0; height: 14px; width: 144px;"> </div> </div> <p style="color: #c9c8cd; font-family: Arial,sans-serif; font-size: 14px; line-height: 17px; margin-bottom: 0; margin-top: 8px; overflow: hidden; padding: 8px 0 7px; text-align: center; text-overflow: ellipsis; white-space: nowrap;"><a style="color: #c9c8cd; font-family: Arial,sans-serif; font-size: 14px; font-style: normal; font-weight: normal; line-height: 17px; text-decoration: none;" href="https://www.instagram.com/reel/ChcBl-LqcRH/?utm_source=ig_embed&amp;utm_campaign=loading" target="_blank" rel="noopener">A post shared by ALT for damerne (@altfordamerne)</a></p> </div> </blockquote> <p>"SYMPATHY LEAK! In solidarity with Finland's Prime Minister Sanna Marin (whose party video has been leaked, so that certain types are now questioning what one can allow themselves to do as Prime Minister)," the post's caption read. </p> <p>"We at ALT for the ladies' editorial office have emptied the camera roll of clips that should never have seen the light of day."</p> <p>"And no, you don't become a worse prime minister, director, school teacher...put in a job yourself...by firing it up on the dance floor at the weekend."</p> <p>Others have been posting messages of support with the hashtags #solidaritywithsanna and #istandwithsanna. </p> <p>Comments of support have flooded online spaces, with one woman saying, "I say ALL women across the world need to post videos of themselves dancing and partying with friends!! Let’s blow up the internet women!!"</p> <p>Another said, "Let’s show those with a “crotchety old men mentality” that they can stick it where the sun don’t shine!!!"</p> <p><em>Image credits: Instagram / Getty Images</em></p>

Beauty & Style

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Anne Heche to be taken off life support

<p dir="ltr">US actress Anne Heche will be taken off life support days after she was reported to be brain dead.</p> <p dir="ltr">The decision comes after the 53-year-old was matched with an organ recipient, per CNN, in line with her wishes, after Heche was pulled out of her burning car, which she had <a href="https://www.oversixty.com.au/health/caring/actress-fighting-for-her-life-after-horror-car-crash" target="_blank" rel="noopener">driven into an LA home</a> while driving 104 km/h on August 5.</p> <p dir="ltr">Heche's publicist broke the news that the <em>Six Days, Seven Nights</em> star was "not expected to survive" on Friday, revealing that Heche had "suffered a severe anoxic brain injury".</p> <p dir="ltr">“We have lost a bright light, a kind and most joyful soul, a loving mother, and a loyal friend,” her spokesperson told <em>Page Six</em> at the time.</p> <p dir="ltr">“Anne will be deeply missed but she lives on through her beautiful sons, her iconic body of work, and her passionate advocacy.</p> <p><span id="docs-internal-guid-02f14bcd-7fff-85ab-3ecc-d0d822147ddc"></span></p> <p dir="ltr">“Her bravery for always standing in her truth, spreading her message of love and acceptance, will continue to have a lasting impact.”</p> <blockquote class="instagram-media" style="background: #FFF; border: 0; border-radius: 3px; box-shadow: 0 0 1px 0 rgba(0,0,0,0.5),0 1px 10px 0 rgba(0,0,0,0.15); margin: 1px; max-width: 540px; min-width: 326px; padding: 0; width: calc(100% - 2px);" data-instgrm-permalink="https://www.instagram.com/p/CdUqTdKLo6E/?utm_source=ig_embed&utm_campaign=loading" data-instgrm-version="14"> <div style="padding: 16px;"> <div style="display: flex; flex-direction: row; align-items: center;"> <div style="background-color: #f4f4f4; border-radius: 50%; flex-grow: 0; height: 40px; margin-right: 14px; width: 40px;"> </div> <div style="display: flex; flex-direction: column; flex-grow: 1; justify-content: center;"> <div style="background-color: #f4f4f4; border-radius: 4px; flex-grow: 0; height: 14px; margin-bottom: 6px; width: 100px;"> </div> <div style="background-color: #f4f4f4; border-radius: 4px; flex-grow: 0; height: 14px; width: 60px;"> </div> </div> </div> <div style="padding: 19% 0;"> </div> <div style="display: block; height: 50px; margin: 0 auto 12px; width: 50px;"> </div> <div style="padding-top: 8px;"> <div style="color: #3897f0; font-family: Arial,sans-serif; font-size: 14px; font-style: normal; font-weight: 550; line-height: 18px;">View this post on Instagram</div> </div> <div style="padding: 12.5% 0;"> </div> <div style="display: flex; flex-direction: row; margin-bottom: 14px; align-items: center;"> <div> <div style="background-color: #f4f4f4; border-radius: 50%; height: 12.5px; width: 12.5px; transform: translateX(0px) translateY(7px);"> </div> <div style="background-color: #f4f4f4; height: 12.5px; transform: rotate(-45deg) translateX(3px) translateY(1px); width: 12.5px; flex-grow: 0; margin-right: 14px; margin-left: 2px;"> </div> <div style="background-color: #f4f4f4; border-radius: 50%; height: 12.5px; width: 12.5px; transform: translateX(9px) translateY(-18px);"> </div> </div> <div style="margin-left: 8px;"> <div style="background-color: #f4f4f4; border-radius: 50%; flex-grow: 0; height: 20px; width: 20px;"> </div> <div style="width: 0; height: 0; border-top: 2px solid transparent; border-left: 6px solid #f4f4f4; border-bottom: 2px solid transparent; transform: translateX(16px) translateY(-4px) rotate(30deg);"> </div> </div> <div style="margin-left: auto;"> <div style="width: 0px; border-top: 8px solid #F4F4F4; border-right: 8px solid transparent; transform: translateY(16px);"> </div> <div style="background-color: #f4f4f4; flex-grow: 0; height: 12px; width: 16px; transform: translateY(-4px);"> </div> <div style="width: 0; height: 0; border-top: 8px solid #F4F4F4; border-left: 8px solid transparent; transform: translateY(-4px) translateX(8px);"> </div> </div> </div> <div style="display: flex; flex-direction: column; flex-grow: 1; justify-content: center; margin-bottom: 24px;"> <div style="background-color: #f4f4f4; border-radius: 4px; flex-grow: 0; height: 14px; margin-bottom: 6px; width: 224px;"> </div> <div style="background-color: #f4f4f4; border-radius: 4px; flex-grow: 0; height: 14px; width: 144px;"> </div> </div> <p style="color: #c9c8cd; font-family: Arial,sans-serif; font-size: 14px; line-height: 17px; margin-bottom: 0; margin-top: 8px; overflow: hidden; padding: 8px 0 7px; text-align: center; text-overflow: ellipsis; white-space: nowrap;"><a style="color: #c9c8cd; font-family: Arial,sans-serif; font-size: 14px; font-style: normal; font-weight: normal; line-height: 17px; text-decoration: none;" href="https://www.instagram.com/p/CdUqTdKLo6E/?utm_source=ig_embed&utm_campaign=loading" target="_blank" rel="noopener">A post shared by Anne Heche (@anneheche)</a></p> </div> </blockquote> <p dir="ltr">The following day, the Los Angeles Police Department (LAPD) said in a statement that the investigation into the crash would not move forward.</p> <p dir="ltr">"As of today, there will be no further investigative efforts made in this case," the LAPD said in a statement to <em><a href="https://pagesix.com/2022/08/14/anne-heche-police-investigation-dismissed-following-stars-death/?_ga=2.230917663.184706205.1660479883-1122528718.1567945808" target="_blank" rel="noopener">Page Six</a></em>.</p> <p dir="ltr">"Any information or records that have been requested prior to this turn of events will still be collected as they arrive as a matter of formalities and included in the overall case.</p> <p dir="ltr">“When a person suspected of a crime expires, we do not present for filing consideration.”</p> <p dir="ltr">After the results for Heche’s blood test following the crash <a href="https://www.oversixty.com.au/health/caring/anne-heche-s-blood-test-results-revealed-after-horror-smash" target="_blank" rel="noopener">detected “the presence of drugs” in her system</a>, police investigations escalated to a “preliminary” felony DUI.</p> <p dir="ltr">Gossip magazine <em>TMZ </em>reported on August 10 that the investigation was escalated after a woman claimed she was injured and needed medical assistance due to Heche crashing into her home.</p> <p dir="ltr"><span id="docs-internal-guid-7a45620a-7fff-a523-348f-68564680d4f2"></span></p> <p dir="ltr">However, an LAPD public information officer told <em>Page Six</em> that the felony was preliminary due to pending further toxicology testing.</p> <blockquote class="instagram-media" style="background: #FFF; border: 0; border-radius: 3px; box-shadow: 0 0 1px 0 rgba(0,0,0,0.5),0 1px 10px 0 rgba(0,0,0,0.15); margin: 1px; max-width: 540px; min-width: 326px; padding: 0; width: calc(100% - 2px);" data-instgrm-captioned="" data-instgrm-permalink="https://www.instagram.com/p/ChKkPVLukOi/?utm_source=ig_embed&utm_campaign=loading" data-instgrm-version="14"> <div style="padding: 16px;"> <div style="display: flex; flex-direction: row; align-items: center;"> <div style="background-color: #f4f4f4; border-radius: 50%; flex-grow: 0; height: 40px; margin-right: 14px; width: 40px;"> </div> <div style="display: flex; flex-direction: column; flex-grow: 1; justify-content: center;"> <div style="background-color: #f4f4f4; border-radius: 4px; flex-grow: 0; height: 14px; margin-bottom: 6px; width: 100px;"> </div> <div style="background-color: #f4f4f4; border-radius: 4px; flex-grow: 0; height: 14px; width: 60px;"> </div> </div> </div> <div style="padding: 19% 0;"> </div> <div style="display: block; height: 50px; margin: 0 auto 12px; width: 50px;"> </div> <div style="padding-top: 8px;"> <div style="color: #3897f0; font-family: Arial,sans-serif; font-size: 14px; font-style: normal; font-weight: 550; line-height: 18px;">View this post on Instagram</div> </div> <div style="padding: 12.5% 0;"> </div> <div style="display: flex; flex-direction: row; margin-bottom: 14px; align-items: center;"> <div> <div style="background-color: #f4f4f4; border-radius: 50%; height: 12.5px; width: 12.5px; transform: translateX(0px) translateY(7px);"> </div> <div style="background-color: #f4f4f4; height: 12.5px; transform: rotate(-45deg) translateX(3px) translateY(1px); width: 12.5px; flex-grow: 0; margin-right: 14px; margin-left: 2px;"> </div> <div style="background-color: #f4f4f4; border-radius: 50%; height: 12.5px; width: 12.5px; transform: translateX(9px) translateY(-18px);"> </div> </div> <div style="margin-left: 8px;"> <div style="background-color: #f4f4f4; border-radius: 50%; flex-grow: 0; height: 20px; width: 20px;"> </div> <div style="width: 0; height: 0; border-top: 2px solid transparent; border-left: 6px solid #f4f4f4; border-bottom: 2px solid transparent; transform: translateX(16px) translateY(-4px) rotate(30deg);"> </div> </div> <div style="margin-left: auto;"> <div style="width: 0px; border-top: 8px solid #F4F4F4; border-right: 8px solid transparent; transform: translateY(16px);"> </div> <div style="background-color: #f4f4f4; flex-grow: 0; height: 12px; width: 16px; transform: translateY(-4px);"> </div> <div style="width: 0; height: 0; border-top: 8px solid #F4F4F4; border-left: 8px solid transparent; transform: translateY(-4px) translateX(8px);"> </div> </div> </div> <div style="display: flex; flex-direction: column; flex-grow: 1; justify-content: center; margin-bottom: 24px;"> <div style="background-color: #f4f4f4; border-radius: 4px; flex-grow: 0; height: 14px; margin-bottom: 6px; width: 224px;"> </div> <div style="background-color: #f4f4f4; border-radius: 4px; flex-grow: 0; height: 14px; width: 144px;"> </div> </div> <p style="color: #c9c8cd; font-family: Arial,sans-serif; font-size: 14px; line-height: 17px; margin-bottom: 0; margin-top: 8px; overflow: hidden; padding: 8px 0 7px; text-align: center; text-overflow: ellipsis; white-space: nowrap;"><a style="color: #c9c8cd; font-family: Arial,sans-serif; font-size: 14px; font-style: normal; font-weight: normal; line-height: 17px; text-decoration: none;" href="https://www.instagram.com/p/ChKkPVLukOi/?utm_source=ig_embed&utm_campaign=loading" target="_blank" rel="noopener">A post shared by James Tupper (@mrjamestupper)</a></p> </div> </blockquote> <p dir="ltr">Heche, who never regained consciousness after the crash, is survived by her 13-year-old son Atlas, who she shares with actor James Trupper, as well as her 20-year-old son Homer, shared with ex-husband Coleman Laffoon.</p> <p dir="ltr"><span id="docs-internal-guid-661f6c10-7fff-c097-316a-6f5c947cb84c"></span></p> <p dir="ltr">On Saturday, Tupper shared a sweet tribute to his late wife to Instagram, posting a single photo of Heche along with the caption: “love you forever 💔”.</p> <blockquote class="instagram-media" style="background: #FFF; border: 0; border-radius: 3px; box-shadow: 0 0 1px 0 rgba(0,0,0,0.5),0 1px 10px 0 rgba(0,0,0,0.15); margin: 1px; max-width: 540px; min-width: 326px; padding: 0; width: calc(100% - 2px);" data-instgrm-captioned="" data-instgrm-permalink="https://www.instagram.com/p/ChLAEgaPFFF/?utm_source=ig_embed&utm_campaign=loading" data-instgrm-version="14"> <div style="padding: 16px;"> <div style="display: flex; flex-direction: row; align-items: center;"> <div style="background-color: #f4f4f4; border-radius: 50%; flex-grow: 0; height: 40px; margin-right: 14px; width: 40px;"> </div> <div style="display: flex; flex-direction: column; flex-grow: 1; justify-content: center;"> <div style="background-color: #f4f4f4; border-radius: 4px; flex-grow: 0; height: 14px; margin-bottom: 6px; width: 100px;"> </div> <div style="background-color: #f4f4f4; border-radius: 4px; flex-grow: 0; height: 14px; width: 60px;"> </div> </div> </div> <div style="padding: 19% 0;"> </div> <div style="display: block; height: 50px; margin: 0 auto 12px; width: 50px;"> </div> <div style="padding-top: 8px;"> <div style="color: #3897f0; font-family: Arial,sans-serif; font-size: 14px; font-style: normal; font-weight: 550; line-height: 18px;">View this post on Instagram</div> </div> <div style="padding: 12.5% 0;"> </div> <div style="display: flex; flex-direction: row; margin-bottom: 14px; align-items: center;"> <div> <div style="background-color: #f4f4f4; border-radius: 50%; height: 12.5px; width: 12.5px; transform: translateX(0px) translateY(7px);"> </div> <div style="background-color: #f4f4f4; height: 12.5px; transform: rotate(-45deg) translateX(3px) translateY(1px); width: 12.5px; flex-grow: 0; margin-right: 14px; margin-left: 2px;"> </div> <div style="background-color: #f4f4f4; border-radius: 50%; height: 12.5px; width: 12.5px; transform: translateX(9px) translateY(-18px);"> </div> </div> <div style="margin-left: 8px;"> <div style="background-color: #f4f4f4; border-radius: 50%; flex-grow: 0; height: 20px; width: 20px;"> </div> <div style="width: 0; height: 0; border-top: 2px solid transparent; border-left: 6px solid #f4f4f4; border-bottom: 2px solid transparent; transform: translateX(16px) translateY(-4px) rotate(30deg);"> </div> </div> <div style="margin-left: auto;"> <div style="width: 0px; border-top: 8px solid #F4F4F4; border-right: 8px solid transparent; transform: translateY(16px);"> </div> <div style="background-color: #f4f4f4; flex-grow: 0; height: 12px; width: 16px; transform: translateY(-4px);"> </div> <div style="width: 0; height: 0; border-top: 8px solid #F4F4F4; border-left: 8px solid transparent; transform: translateY(-4px) translateX(8px);"> </div> </div> </div> <div style="display: flex; flex-direction: column; flex-grow: 1; justify-content: center; margin-bottom: 24px;"> <div style="background-color: #f4f4f4; border-radius: 4px; flex-grow: 0; height: 14px; margin-bottom: 6px; width: 224px;"> </div> <div style="background-color: #f4f4f4; border-radius: 4px; flex-grow: 0; height: 14px; width: 144px;"> </div> </div> <p style="color: #c9c8cd; font-family: Arial,sans-serif; font-size: 14px; line-height: 17px; margin-bottom: 0; margin-top: 8px; overflow: hidden; padding: 8px 0 7px; text-align: center; text-overflow: ellipsis; white-space: nowrap;"><a style="color: #c9c8cd; font-family: Arial,sans-serif; font-size: 14px; font-style: normal; font-weight: normal; line-height: 17px; text-decoration: none;" href="https://www.instagram.com/p/ChLAEgaPFFF/?utm_source=ig_embed&utm_campaign=loading" target="_blank" rel="noopener">A post shared by Coley Laffoon (@coleylaffoon)</a></p> </div> </blockquote> <p dir="ltr">Laffoon took to social media to wish his ex-wife peace on her journey, sharing a throwback photo of Heche with their son as a baby.</p> <p dir="ltr">“It’s important to remember the real love in the best times. Thank you Anne. Peace on your journey,” he wrote.</p> <p dir="ltr"><span id="docs-internal-guid-dd5ef628-7fff-d8e9-c738-71dae7ec97e9"></span></p> <p dir="ltr"><em>Image: @anneheche (Instagram)</em></p>

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“Our country have failed a 12-year– old”: Archie’s parents concede defeat

<p dir="ltr">After their <a href="https://o60.me/bvX9fj" target="_blank" rel="noopener">fight to keep their 12-year-old son alive</a> failed in the British courts, UK couple Hollie Dance and Paul Battersbee have lost their appeal to the European Court of Human Rights to prevent his life-support treatment from ending.</p> <p dir="ltr">After Archie Battersbee was found unconscious at home with a ligature over his head in early April, his parents have been fighting to prevent the Royal London Hospital from turning off his ventilator and stopping other interventions that are keeping him alive. </p> <p dir="ltr">Doctors believe Archie Battersbee is brain-stem dead and say it isn’t in his best interest to continue life-support treatment. </p> <p dir="ltr">Dance said the family’s lawyer submitted an application to the Strasbourg, the European human rights court based in France, hours before doctors planned to begin withdrawing Archie’s life-support on Wednesday.</p> <p dir="ltr">However, the court said it would not “interfere with the decisions of the national courts to allow the withdrawal of life-sustaining treatment from [Archie] to proceed”.</p> <p dir="ltr">Speaking to reporters outside the hospital, Dance appeared to concede that the fight to keep their son alive was over.</p> <p dir="ltr">"It's the end, it was the last thing, wasn't it, and again our country have failed a 12-year-old child,” Dance said of their latest legal defeat.</p> <p dir="ltr">Now, she wants to move Archie into a hospice to ensure he has a “dignified passing”.</p> <p dir="ltr">"We've now got a fight to see whether we can get him out of here to have a dignified passing at a hospice. It's just unfair,” she said.</p> <p dir="ltr">Earlier, she said the family “will not give up on Archie until the end”, and that they were considering offers from Japan and Italy to continue his treatment.</p> <p dir="ltr">"There's other countries that want to treat him and I think that he should be allowed to go," Dance said.</p> <p dir="ltr">Their case is the latest where the judgement of doctors has been pitted against the wishes of families, and is one of several that have been backed by religious pressure group, Christian Concern.</p> <p dir="ltr">Under UK law, courts can intervene when parents and doctors disagree on a child’s treatment, with the rights of the child taking priority over the parents’ right to decide.</p> <p dir="ltr">On Tuesday, the UK Supreme Court said Archie had “no prospect of any meaningful recovery”, and that he would still die from organ and heart failure in the next few weeks if treatment continued. The judges agreed with a lower court ruling that treatment “serves only to protract his death”.</p> <p dir="ltr">Alistair Chesser, the chief medical officer for Barts Health NHS Trust, which operates the hospital treating Archie, said his life-support treatment would continue for now.</p> <p dir="ltr">"As directed by the courts, we will work with the family to prepare for the withdrawal of treatment, but we will make no changes to Archie's care until the outstanding legal issues are resolved,” Chesser said.</p> <p><span id="docs-internal-guid-f78ac826-7fff-3aab-0a11-52610f60c47a"></span></p> <p dir="ltr"><em>Image: Getty Images</em></p>

Caring

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“We will continue to fight”: Parents fight for their son’s life

<p dir="ltr">A UK boy will be taken off life support at 12pm on Tuesday (5pm AEST), after his parents unsuccessfully fought the decision at a last-minute court hearing.</p> <p dir="ltr">Judges were asked by the government to consider a request from a UN committee to continue treating the boy, who has been in a comatose state for three months, after the family appealed to the United Nations for help in their case.</p> <p dir="ltr">However, the Court of Appeal refused to postpone withdrawing his life support shouldn’t be postponed beyond Tuesday.</p> <p dir="ltr">Archie Battersbee, 12, was found unconscious at his Essex home on April 7, and has been comatose since.</p> <p dir="ltr">His mother, Hollie Dance, believed he was taking part in an online challenge at the time.</p> <p dir="ltr">Doctors treating Archie at the Royal London Hospital believe he is brain-dead and argue it is in his best interest to end life support.</p> <p><span id="docs-internal-guid-9825a9de-7fff-d820-111d-10af6f596ecd"></span></p> <p dir="ltr">On July 18, Appeal Court judges ruled the doctor could lawfully disconnect Archie’s ventilator, with appeal judge Justice Anthony Hayden describing Archie’s circumstances as a “tragedy of immeasurable dimensions”, but saying that medical evidence was “compelling and unanimous”.</p> <p dir="ltr"><img src="https://oversixtydev.blob.core.windows.net/media/2022/08/archie-bbc1.jpg" alt="" width="976" height="549" /></p> <p dir="ltr"><em>Image: Hollie Dance</em></p> <p dir="ltr">Meanwhile, Dance and Paul Battersbee, Archie’s father, have been fighting through the courts to keep their son alive.</p> <p dir="ltr">They had been told by health officials that their son would no longer receive treatment after 2pm on Monday (11pm AEST).</p> <p dir="ltr">A previous High Court ruling heard that Archie’s “every bodily function is now maintained by artificial means”.</p> <p dir="ltr">However, Dance has claimed she has seen indications of Archie attempting to breathe independently twice in the last few days.</p> <p dir="ltr">After the family wrote to the UN Committee on the Rights of Persons with Disabilities, the committee requested Archie’s case to be reconsidered.</p> <p dir="ltr">“We write on behalf of the Secretary of State for Health and Social Care,” the letter to the High Court stated.</p> <p dir="ltr">“We understand that A’s life support is due to be switched off at 2pm on Monday 1 August, 2022.</p> <p dir="ltr">“In the circumstances, (given the application to the UN Committee on the Rights of Persons with Disabilities) we wish to draw the Committee’s request for the interim measures to the Court’s attention for its urgent consideration.</p> <p dir="ltr">“We request that this letter is placed before the out-of-hours judge immediately and/or if possible, before Mr Justice Hayden.”</p> <p dir="ltr">The request prompted an emergency hearing on Monday, where the President of the court’s family division, Sir Andrew McFarlane, said the UN convention that made the request was “not part of the law of the United Kingdom”, per the <em><a href="https://www.bbc.com/news/uk-england-essex-62376552" target="_blank" rel="noopener">BBC</a></em>.</p> <p dir="ltr">“Every day he continues to be given life-sustaining treatment is contrary to his best interests, so a stay, even for a short time, is against his best interests,” the judge said.</p> <p dir="ltr">The judges also refused to grant permission to appeal their ruling in the Supreme Court.</p> <p dir="ltr">But, Dance and Battersbee might now ask Supreme Court justices to consider their application for permission to appeal directly.</p> <p dir="ltr">In a statement, Dance said she was “shocked and traumatised” by what she feels is “the brutality of the UK courts and the hospital trust”.</p> <p dir="ltr">"Our wishes as parents continue to be trampled on and ignored," she said. "We do not understand the urgency and rush to end life-support.</p> <p dir="ltr">"The hospital trust has at no point given us time to come to terms with what has happened.</p> <p dir="ltr">"This is no way for a compassionate society to treat a family in our situation. We will continue to fight for Archie."</p> <p dir="ltr">Outside court, Dance urged other parents to make sure their children weren’t taking part in dangerous online trends.</p> <p dir="ltr">“Please, please, parents, have the conversation with your children because I know there’s a whole new lot of online challenges,” she said.</p> <p dir="ltr">“I don’t want any parent out there to have what we’ve been going through and I definitely don’t want to see any more children losing their lives.”</p> <p dir="ltr"><span id="docs-internal-guid-2d246850-7fff-fcc3-d19f-ec7f880e82da"></span></p> <p dir="ltr"><em>Image: Hollie Dance</em></p>

Legal

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Support the environment. Don’t mow your lawn

<div class="copy"> <p><span style="font-family: inherit;">Mowing urban lawns less often or less severely increases biodiversity, saves money and reduces pests, according to research from the British Ecological Society.</span></p> <p><span style="font-family: inherit;">A meta-analysis of data from North America and Europe found strong evidence, the researchers say, that greater mowing intensity at home, in parks and on roundabouts and road verges has negative effects, particularly on invertebrate and plant diversity. Pest species thrive, however.</span></p> <p><span style="font-family: inherit;">“Even a modest reduction in lawn mowing frequency can bring a host of environmental benefits: increased pollinators, increased plant diversity and reduced greenhouse gas emissions,” says Chris Watson from the University of Quebec at Trois-Rivières, Canada, lead author of a <a href="https://dx.doi.org/10.1111/1365-2664.13542" target="_blank" rel="noopener">paper</a> in the <em>Journal of Applied Ecology</em>.</span></p> <p><span style="font-family: inherit;">“At the same time, a longer, healthier lawn makes it more resistant to pests, weeds, and drought events.”</span></p> <p><span style="font-family: inherit;">The reason, Watson says, is that regular mowing favours grasses, which grow from the base of the plant, and low growing species such as dandelion and clover. Other species that have their growing tips or flowering stems regularly removed by mowing can’t compete. {%recommended 6627%}</span></p> <p><span style="font-family: inherit;">“These findings support a lot of research done by the turfgrass industry that shows that the more disturbance a lawn gets, the higher the likelihood of pest and weed invasion,” he adds. </span></p> <p><span style="font-family: inherit;">For their meta-analysis, the researchers identified 14 studies undertaken in urban areas between 2004 and 2019 that measured mowing intensity (either height or frequency) as an experimental factor. They also included three unpublished studies of their own. </span></p> <p><span style="font-family: inherit;">A separate case study was used to estimate the economic costs of high-intensity lawn management – which are known to be considerable.</span></p> <p><span style="font-family: inherit;">Previous studies have shown, for example, that the cost of allergies to ragweed, which is common in North America and Europe, is around CAD$155 million per year in Quebec and €133 million a year in Austria and Bavaria. </span></p> <p>As it has a more rapid reproduction than other species, the researchers say, ragweed is able to colonise disturbances caused by intense mowing.</p> <p><span style="font-family: inherit;">You can also save money more directly. In their case study, Watson and colleagues analysed mowing contractor data from the city of Trois-Rivières. They estimated a 36% reduction in public maintenance costs when mowing frequency was reduced from 15 to 10 times per year in high use lawn areas and from three times to once a year in low use areas.</span></p> <p><span style="font-family: inherit;">Watson acknowledges that people worry that leaving grass long attracts ticks and rodents but says there is little evidence to support this. </span></p> <p><span style="font-family: inherit;">“The presence of ticks are more strongly related to host populations, like deer, than type of vegetation,” he says. “With respect to small mammals, some species prefer longer grass, whereas others do not.”</span></p> <p>The plan now is to expand the research and begin applying the findings to improve lawns.</p> <p><em>Image credits: Getty Images</em></p> </div> <div id="contributors"> <p><em>This article was originally published on <a href="https://cosmosmagazine.com/earth/sustainability/support-the-environment-dont-mow-your-lawn/" target="_blank" rel="noopener">cosmosmagazine.com</a> and was written by Nick Carne. </em></p> </div>

Home Hints & Tips

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James Cromwell glues hand to Starbucks counter in support of animal rights

<p dir="ltr"><em>Babe</em> actor James Cromwell caused quite a stir in a Starbucks after gluing his hand to the counter in support of animal rights.</p> <p dir="ltr">The popular coffee chain recently announced an extra charge for plant based milk which has infuriated the Best Supporting Actor Oscar.</p> <p dir="ltr">Activist group People for the Ethical Treatment of Animals organised the protest, with Cromwell taking the lead and gluing himself to the counter, calling for the surcharge to be removed.</p> <p dir="ltr">“Non-dairy products all over the world…France, they give these things away. There’s no charge for it. Here, there’s an exorbitant charge,” he said.</p> <p dir="ltr">“Why, when it’s so important now to address climate change and to understand the violence to animals to go on to make dairy products that are served here? There’s no reason for it except greed.”</p> <p dir="ltr">Police were called to the Starbucks asking the protestors to leave which they did with no arrests made.</p> <p dir="ltr">In a statement, Starbucks explained how customers are also slugged a surcharge when ordering other non-dairy milk with their orders.</p> <p dir="ltr">"Customers can customise any beverage on the menu with a non-dairy milk, including soy milk, coconut milk, almond milk, and oat milk for an additional cost (similar to other beverage customisations such as an additional espresso shot or syrup)," the statement read.</p> <p dir="ltr">"Pricing varies market by market."</p> <p dir="ltr">Police were eventually called to the Starbucks and asked the protestors to leave with no arrests made.</p> <p dir="ltr">Watch the video <a href="https://www.facebook.com/official.peta/videos/2237669893078098" target="_blank" rel="noopener">here</a>.</p> <p dir="ltr"><em>Images: Twitter</em></p>

Travel Trouble

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Ashamed of asking for technical support? You are not alone!

<p>The spread of new technologies tied to a race for innovation, products and services’ growing interdependence and, more generally, <a href="https://theconversation.com/will-services-be-the-saviour-of-manufacturing-70081" target="_blank" rel="noopener">the transformation of products into services</a> can also make them more complex to use. To help consumers, companies are introducing a wealth of instructions, tutorials and pictograms that can be difficult to understand, all too often leaving consumers even more <a href="https://theconversation.com/confusopoly-why-companies-are-motivated-to-deliberately-confuse-39563" target="_blank" rel="noopener">confused</a>.</p> <p>The scene is all too familiar: who has never scratched their head in front of a machine, a new device or trying to complete an online booking? While many innovations are often designed and implemented to ease the consumer’s daily life, they may also be the source of new problems. Consumers adopt various strategies to cope with these difficulties of use: online tutorials, help from neighbours or friends, but many, perhaps surprisingly, also end up dropping their new product or service altogether.</p> <p>The reasons for not seeking help may be psychological. In the field of social psychology, over the last 40 years, researchers have been exploring help-seeking in various contexts, mostly focusing on medical and psychological help or on help-seeking in the classroom. It appears that not everyone is <a href="https://www.washingtonpost.com/lifestyle/wellness/asking-help-coronavirus-hard-shame/2020/04/17/e1d3ef90-7e91-11ea-8013-1b6da0e4a2b7_story.html" target="_blank" rel="noopener">comfortable asking for help</a> and that some individuals systematically seem to avoid seeking help.</p> <p>Indeed, help-seeking may be perceived as threatening, as it may call into question the applicant’s personal competence in his or her own eyes. But he or she may also fear appearing incompetent in the eyes of the helper. Help-seeking also conflicts with important values for Westerners: autonomy and control. Finally, it may restrict one’s freedom of choice, for example when feeling forced to accept a commercial offer in return for the help given.</p> <p><strong>Fear of appearing incompetent</strong></p> <p>In our article to be published in the journal <em><a href="https://journals.sagepub.com/home/rme" target="_blank" rel="noopener">Recherches et Application en Marketing</a></em>, we explored one of the possible responses for the modern troubled consumer: seeking the supplier’s help. Although it appears to be a fairly obvious solution, it is not often used by consumers.</p> <p>Through a series of studies, we sought to understand whether avoiding to seek help exists in a consumption context when a customer finds it difficult to use a product or service. A qualitative study and four quantitative studies (samples between 150 and 450 individuals) led us to the conclusion that more than a third – a significant and seemingly large proportion – of consumers tend to avoid asking for help.</p> <p>These studies also enabled us to build a psychometric measurement tool to assess the tendency of each individual to be more or less avoidant. The common behaviour of help-seeking avoidance is based on two dimensions, stemming from the qualitative part of the study. The first dimension is the refusal to ask for help because it causes embarrassment or even shame for the asker, as one consumer we interviewed explained:</p> <blockquote> <p>“Sometimes you feel ashamed, because you are afraid that the person you are talking to might think you don’t understand anything.”</p> </blockquote> <p>The second dimension lies in the evaluation of the interlocutor. More specifically, in both their perceived willingness and their perceived ability to help, as illustrated by this statement of a consumer:</p> <blockquote> <p>“[Companies] are all the same, they are always rude and they never solve your problems.”</p> </blockquote> <p>These two dimensions contribute to explain consumers’ intention to seek help or not. This research also highlights the relationship between the avoidance tendency and specific psychological traits such as an external <a href="https://dictionary.apa.org/locus-of-control" target="_blank" rel="noopener">locus of control</a> (the tendency to attribute the cause of events outside one’s control to others, a specific context, for example), <a href="https://dictionary.apa.org/state-orientation" target="_blank" rel="noopener">state orientation</a> (the tendency not to act) and <a href="https://www.nhs.uk/mental-health/conditions/social-anxiety/" target="_blank" rel="noopener">social anxiety</a>.</p> <p><strong>Companies can take action</strong></p> <p>Difficulties encountered are admittedly damaging for the consumer, but they are also ultimately damaging for the company. Indeed, a customer who cannot have full use of one’s product may abandon not only the product, but the brand. One may also express dissatisfaction or frustration and spread negative word of mouth. Incidentally, there is a high failure rate for high-tech product launches.</p> <p>What can companies do to ease and encourage requests from their customers? First of all, they can act on the potential embarrassment. Indeed, it appears that help requested through a screen leads to less discomfort. In this respect, live chat is a very interesting tool to encourage the triggering of requests.</p> <p>In addition, companies can communicate about their willingness and ability to assist their customers – and dedramatise assistance requests. Indeed, many companies still do not advertise on means available to contact them, often for fear of having to manage too many customer contacts. According to our research, this is interpreted by consumers as unwillingness to help.</p> <p>Moreover, communicating the positive results of customers requesting help or, more generally, of contacts with the customer service would also be an effective lever. Finally, in addition to being beneficial for customer satisfaction, requests for help can have another positive impact: for example, they allow improvements to be made to products and services.<img style="border: none !important; box-shadow: none !important; margin: 0 !important; max-height: 1px !important; max-width: 1px !important; min-height: 1px !important; min-width: 1px !important; opacity: 0 !important; outline: none !important; padding: 0 !important; text-shadow: none !important;" src="https://counter.theconversation.com/content/173716/count.gif?distributor=republish-lightbox-basic" alt="The Conversation" width="1" height="1" /></p> <p><em><a href="https://theconversation.com/profiles/marion-sangle-ferriere-1220471" target="_blank" rel="noopener">Marion Sanglé-Ferrière</a>, Maître de conférence en marketing, <a href="https://theconversation.com/institutions/cy-cergy-paris-universite-2217" target="_blank" rel="noopener">CY Cergy Paris Université</a> and <a href="https://theconversation.com/profiles/ben-voyer-110420" target="_blank" rel="noopener">Ben Voyer</a>, Full Professor, Department of Entrepreneurship, <a href="https://theconversation.com/institutions/escp-business-school-813" target="_blank" rel="noopener">ESCP Business School</a></em></p> <p><em>This article is republished from <a href="https://theconversation.com" target="_blank" rel="noopener">The Conversation</a> under a Creative Commons license. Read the <a href="https://theconversation.com/ashamed-of-asking-for-technical-support-you-are-not-alone-173716" target="_blank" rel="noopener">original article</a>.</em></p> <p><em>Image: Getty Images</em></p>

Technology

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Children killed in Hillcrest tragedy identified amid overwhelming support

<p><em>Image: GoFundMe</em></p> <p>Tributes from all over the world are pouring in as people have dug deep to support the victims and their families following the horrific jumping castle tragedy in Tasmania that has killed five children and critically injured several more.</p> <p>Zoe Smith, who describes herself as “a local girl who grew up in Devonport”, said she started a GoFundMe fundraising page despite not knowing any of the children killed or injured.</p> <p>An overwhelming number of donations have been lodged so far, with more than $250,000 raised in less than 24 hours – and the total is continuing to rise quickly in the wake of such a tragic incident.</p> <p>Police say a “significant local wind event” contributed to the jumping castle flying more than 10 metres into the air as students from Hillcrest Primary School gathered to celebrate the end of the school year.</p> <p>It’s unknown at this stage how many children were on the jumping castle at the time, or how it was anchored down.</p> <p>Messages of condolence are flowing in for two of the students who have been identified among the dead, with separate GoFundMe pages set up for them.</p> <p>They were named as Grade Six students Zane and Addison.</p> <p>Addison’s aunt wrote that she “was always such a sweet kind, old soul.”</p> <p>“My niece was tragically taken in the accident at Hillcrest Primary. I’m hoping to raise some money for my brother and sister in-law to help pay for funeral costs and to pay off some bills for them while they try and navigate life without their precious daughter,” she wrote. “They have another daughter and son to take care of and I’m hoping to alleviate some of the stress of bills.”</p> <p>Ms Smith said set up her fundraiser because she was “moved by the tragedy” like many other Australians and wanted to do something “to support the families throughout Christmas”.</p> <p>“All funds will go to the families of the children who were tragically killed and injured to not only support them but provide them with much needed gifts in this time of such sadness,” she said. “All the funds will be donated to the school and the Parents and Friends committee to be distributed to the families affected!”</p> <p>“Any donation is much appreciated and hopefully we as the incredible community of Devonport can rally to support such deserving and hurting people,” Ms Smith said.</p> <p>Support has been put in place for the school community, including school counsellors and chaplains for use over the holiday period.</p> <p>In an interview on The Project, Mayor Annette Rockcliff said she had met the students only last week after visiting the primary school.</p> <p>“I did meet all of those children last week, I was in their classroom for an hour or so, so it’s tough to think about that”, she said, looking visibly upset.</p> <p>Police officers who responded to the scene were visible distressed by what they saw.</p> <p>“These children were meant to be celebrating their last day of primary school, instead we’re all mourning their loss,” Tasmania Police Commissioner Darren Hine said. “Emergency services were called to the scene around 10 am this morning after a wind gust had reportedly caused the jumping castle and inflatable zorb balls to lift into the air.”</p> <p>“Our thoughts are also with those emergency services personnel who attended to try and save these people’s lives,” he said.</p> <p>Investigations are underway into the incident, with involvement from WorkSafe Tasmania.</p> <p>Mr Hine said that investigation could take “quite some time”.</p> <p>You can donate to the GoFundMe <a href="https://www.gofundme.com/f/hillcrestprimary?utm_source=widget&amp;utm_medium=referral&amp;utm_campaign=p_cp+share-sheet">here</a>. </p>

News

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Alec Baldwin's daughter posts touching message of support

<p dir="ltr">Ireland Baldwin, the 26-year-old daughter of Alec Baldwin and Kim Basinger, shared a strong message of support for her father following his involvement in the<span> </span><a rel="noopener" href="https://oversixty.com.au/news/news/alec-baldwin-allegedly-shot-and-killed-cinematographer" target="_blank">on-set death</a><span> </span>of cinematographer Halyna Hutchins last week.</p> <p dir="ltr">Hutchins was<span> </span><a rel="noopener" href="https://oversixty.com.au/news/news/devastating-new-details-of-alec-baldwin-shooting" target="_blank">fatally shot and killed</a><span> </span>in an accident on the set of the movie<span> </span><em>Rust,<span> </span></em>and while not all details have been made public and authorities have not brought any charges against anyone present at the time of the accident, people,<span> </span><a rel="noopener" href="https://oversixty.com.au/finance/legal/donald-trump-jr-selling-t-shirts-mocking-alec-baldwin-shooting" target="_blank">including Donald Trump Jr</a>, have been quick to blame Baldwin for Hutchins’ death.</p> <p dir="ltr">Baldwin’s eldest daughter took to Instagram to respond to those who were quick to condemn her father, sharing a screenshot of a heartwarming anecdote someone had shared about her father. Tracey Nolan wrote that while working in a production office in Toronto, she’d “dealt with typing up some pretty goofy celebrity riders in my day but NOT your dad’s.</p> <p dir="ltr">“He only wanted to make sure he had milk and cereal in his hotel room for when his daughter was visiting. That was it. That was the whole rider. I’ll always remember that.” Baldwin was working on the Thomas the Tank Engine movie<span> </span><em>Thomas and the Magic Railroad</em><span> </span>at the time.</p> <blockquote style="background: #FFF; border: 0; border-radius: 3px; box-shadow: 0 0 1px 0 rgba(0,0,0,0.5),0 1px 10px 0 rgba(0,0,0,0.15); margin: 1px; max-width: 540px; min-width: 326px; padding: 0; width: calc(100% - 2px);" class="instagram-media" data-instgrm-captioned="" data-instgrm-permalink="https://www.instagram.com/p/CVi4zo3hlzR/?utm_source=ig_embed&amp;utm_campaign=loading" data-instgrm-version="14"> <div style="padding: 16px;"> <div style="display: flex; flex-direction: row; align-items: center;"> <div style="background-color: #f4f4f4; border-radius: 50%; flex-grow: 0; height: 40px; margin-right: 14px; width: 40px;"></div> <div style="display: flex; flex-direction: column; flex-grow: 1; justify-content: center;"> <div style="background-color: #f4f4f4; border-radius: 4px; flex-grow: 0; height: 14px; margin-bottom: 6px; width: 100px;"></div> <div style="background-color: #f4f4f4; border-radius: 4px; flex-grow: 0; height: 14px; width: 60px;"></div> </div> </div> <div style="padding: 19% 0;"></div> <div style="display: block; height: 50px; margin: 0 auto 12px; width: 50px;"></div> <div style="padding-top: 8px;"> <div style="color: #3897f0; font-family: Arial,sans-serif; font-size: 14px; font-style: normal; font-weight: 550; line-height: 18px;">View this post on Instagram</div> </div> <p style="color: #c9c8cd; font-family: Arial,sans-serif; font-size: 14px; line-height: 17px; margin-bottom: 0; margin-top: 8px; overflow: hidden; padding: 8px 0 7px; text-align: center; text-overflow: ellipsis; white-space: nowrap;"><a style="color: #c9c8cd; font-family: Arial,sans-serif; font-size: 14px; font-style: normal; font-weight: normal; line-height: 17px; text-decoration: none;" rel="noopener" href="https://www.instagram.com/p/CVi4zo3hlzR/?utm_source=ig_embed&amp;utm_campaign=loading" target="_blank">A post shared by i r e l a n d ♥️ (@irelandbasingerbaldwin)</a></p> </div> </blockquote> <p dir="ltr">Ireland’s own caption beneath reads, “Amongst some of the most abhorrent and threatening comments, emails, text messages, and voicemails I’ve been getting... this beautiful comment stands alone. I know my dad, you simply don’t. I love you, Dad ❤️”</p> <p dir="ltr">While nobody has been charged, authorities have not ruled out the possibility. Soon after news of the accident broke, Baldwin<span> </span><a rel="noopener" href="https://twitter.com/AlecBaldwin/status/1451572461787439106" target="_blank">tweeted</a>, “There are no words to convey my shock and sadness regarding the tragic accident that took the life of Halyna Hutchins, a wife, mother and deeply admired colleague of ours. I'm fully cooperating with the police investigation to address how this tragedy occurred and I am in touch with her husband, offering my support to him and his family. My heart is broken for her husband, their son, and all who knew and loved Halyna.”</p> <blockquote style="background: #FFF; border: 0; border-radius: 3px; box-shadow: 0 0 1px 0 rgba(0,0,0,0.5),0 1px 10px 0 rgba(0,0,0,0.15); margin: 1px; max-width: 540px; min-width: 326px; padding: 0; width: calc(100% - 2px);" class="instagram-media" data-instgrm-captioned="" data-instgrm-permalink="https://www.instagram.com/p/CVOR_F9jZ0c/?utm_source=ig_embed&amp;utm_campaign=loading" data-instgrm-version="14"> <div style="padding: 16px;"> <div style="display: flex; flex-direction: row; align-items: center;"> <div style="background-color: #f4f4f4; border-radius: 50%; flex-grow: 0; height: 40px; margin-right: 14px; width: 40px;"></div> <div style="display: flex; flex-direction: column; flex-grow: 1; justify-content: center;"> <div style="background-color: #f4f4f4; border-radius: 4px; flex-grow: 0; height: 14px; margin-bottom: 6px; width: 100px;"></div> <div style="background-color: #f4f4f4; border-radius: 4px; flex-grow: 0; height: 14px; width: 60px;"></div> </div> </div> <div style="padding: 19% 0;"></div> <div style="display: block; height: 50px; margin: 0 auto 12px; width: 50px;"></div> <div style="padding-top: 8px;"> <div style="color: #3897f0; font-family: Arial,sans-serif; font-size: 14px; font-style: normal; font-weight: 550; line-height: 18px;">View this post on Instagram</div> </div> <p style="color: #c9c8cd; font-family: Arial,sans-serif; font-size: 14px; line-height: 17px; margin-bottom: 0; margin-top: 8px; overflow: hidden; padding: 8px 0 7px; text-align: center; text-overflow: ellipsis; white-space: nowrap;"><a style="color: #c9c8cd; font-family: Arial,sans-serif; font-size: 14px; font-style: normal; font-weight: normal; line-height: 17px; text-decoration: none;" rel="noopener" href="https://www.instagram.com/p/CVOR_F9jZ0c/?utm_source=ig_embed&amp;utm_campaign=loading" target="_blank">A post shared by Halyna Hutchins (@halynahutchins)</a></p> </div> </blockquote> <p dir="ltr"><em>Image: Kevork Djansezian/Getty Images for Comedy Central</em></p>

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